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ANNUAL REPORT 2023 | Unveiling TIF’s Impactful Achievements

It is a privilege to present the Federation’s Annual Report for 2023, marking a transformative year with the onset of new initiatives reflecting evolving priorities.

In 2023, TIF enhanced its advocacy efforts with the WHO to advance the UN Sustainable Development Goals 2030 and universal health coverage, ensuring haemoglobinopathies remained a health agenda priority. Regional and international networks, such as TIF’s Regional Networks (Arab, Nordic, ASEAN, Americas) and Rare Anaemias International Network (RAIN) facilitated education, empowerment, and policymaker awareness.

The monumental TIF International Conference in Malaysia provided a vital platform for sharing best practices, discussing scientific breakthroughs, and fostering international collaboration to advance thalassaemia research and care. Focus on low- and middle-income countries remained steadfast to alleviate patient burdens through targeted initiatives and sustainable solutions for equitable care provision.

Notable advancements included publishing ground-breaking Guidelines for the Clinical Management of α-Thalassaemia, a Clinicians Guide on Nutrition in Thalassaemia, and the 3rd edition of Guidelines for Non-Transfusion Dependent β-Thalassaemia, offering crucial insights for daily patient care.

Inaugurating new partnerships and strengthening existing ones with professional associations were key highlights that enhanced multidisciplinary care understanding. The debut of TIF Library Extended (TIFLiX), our flagship digital repository, offers extensive resources from TIF’s educational events.

Moreover, intensified efforts to improve patient access to both advanced and standard therapies for individuals with thalassaemia and other haemoglobinopathies remained a central focus of our work..

Reflecting on 2023’s achievements fills us with gratitude for our Members’ support—healthcare professionals, academia, researchers, industry partners—and most importantly, patients and caregivers. Their resilience and support enable us to achieve even greater strides toward a brighter future for our communities.

For an in-depth look at our work, download the full Annual Report 2023 HERE.

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