The Thalassaemia International Federation (TIF) has recently initiated a new survey project, in collaboration with the Open University of Cyprus, aimed at gaining a deeper understanding of the health and social care services provided to chronic patients, particularly those affected by thalassaemia.
The survey focuses on capturing the patient perspective on thalassaemia care delivery in various countries.
This initiative by TIF aims to gather valuable insights into the experiences and challenges faced by individuals living with thalassaemia, as well as their access to healthcare services. By conducting this survey, TIF hopes to identify gaps in care, highlight best practices, and advocate for improved support for patients with thalassaemia.
The survey will cover a wide range of aspects related to thalassaemia care delivery, including medical treatment options, accessibility of healthcare services, availability of specialized professionals, affordability of treatments, and the overall quality of life for patients. The data collected through this project will contribute towards formulating evidence-based recommendations for policymakers and healthcare providers.
By involving patients directly in this project, TIF aims to ensure that their voices are heard and that their perspectives shape future improvements in thalassaemia care!
