News
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WORLD BLOOD DONOR DAY 2026 | One Drop of Humanity. Give Blood. Save Lives.
This year’s World Health Organization (WHO) theme, “One Drop of Humanity. Give Blood. Save Lives.”, captures the essence of blood donation as one of the most powerful expressions of human…
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EU APPROVES MITAPIVAT | A New Treatment Milestone for Adults with α- or β-Thalassaemia
This decision is of particular importance because it covers a broad adult thalassaemia population, including both alpha- and beta-thalassaemia and both transfusion-dependent and non-transfusion-dependent disease. According to Agios Pharmaceuticals’ official…
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NEW WHO GUIDELINES | Strengthening Global Guidance for Paediatric and Adolescent Sickle Cell Disease Care
This highly significant publication represents the first WHO normative guideline dedicated to the diagnosis, prevention, and clinical management of sickle-cell disease in children and adolescents aged 0–19 years. It addresses…
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TIF STATEMENT | A Plea for the Untold Victims of Conflict
The purpose of this plea is not to repeat facts well known. Instead, we want this to act as a reminder of the real human cost behind the headlines and…
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APLASTIC ANAEMIA | ASH Publishes Guidelines on Diagnosis and Management of Severe and Very Severe Disease
Aplastic anaemia is a rare disorder characterized by bone marrow failure and reduced production of blood cells, resulting in pancytopenia and increased risks of infection, bleeding, and fatigue. Severe and…
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TIF WEBINAR SERIES 2026 | Bridging the Communication Gap in Haemoglobinopathy Care
This year, the Thalassaemia International Federation (TIF) launches a transformative quarterly webinar series designed to strengthen dialogue between patients, families, and healthcare providers across the global haemoglobinopathy community. Through practical…
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wAIHA | Rilzabrutinib Receives FDA Breakthrough Therapy Designation
Warm autoimmune haemolytic anaemia is a rare autoimmune disorder characterized by the premature destruction of red blood cells, leading to anemia and other serious complications, such as significant fatigue, dizziness,…
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RARE DISEASE DAY 2026 | More Than You Can Imagine
This year’s theme, “More Than You Can Imagine,” reminds us that rare diseases are far more common, complex, and impactful than many realise. While each individual condition may affect a…
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