Prevention is the only measure that can drastically reduce the incidencies of severe haemoglobin disorders, such as β-thalassaemia. It is also what allowed countries like Greece, Italy and Cyprus to go from historically high rates of thalassaemia to a substantial decrease of thalassaemia major cases in the last decades. ...
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On 14 June 2020 WHO and all countries worldwide will celebrate World Blood Donor Day! The campaign theme for this year’s World Blood Donor Day is “Safe blood saves lives” with the slogan “Give blood and make the world a healthier place”. The idea is to focus on the ...
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”I was shocked at the huge discrepancy between how common thalassaemia is and how few people actually know about it.” Jensen Chan, a University student from Singapore, explains how his brother, a thalassaemia carrier, inspired him to learn more about this blood disorder and start a campaign to increase public ...
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As the online celebrations for the International Thalassaemia Day 2020 are at their peak, TIF decided to publish today as a gift to its worldwide patient communities a new guide entitled ”COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations”. Patients with thalassaemia and sickle cell disease ...
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The 1st webinar for Medical Specialists organised in the context of TIF’s eThalEd online course has just arrived! Dr Antonio Piga, Professor of Paediatrics & Dean of the Medicine School at San Luigi University Hospital of the Turin University, will be the host of this introductory webinar entitled ”Access to New Therapies: Reblozyl”. ...
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TIF expresses major concerns over the announcement of the United States to suspend financial support for the World Health Organisation (WHO) until completion of a review of the organisation’s activities related to the COVID-19 pandemic.
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The SARS-CoV-2 infection presents particular challenges and great risks to patients with thalassaemia and sickle cell disease (SCD) and, if their appropriate clinical management as described in International Guidelines is not safeguarded in the context of national policies developed for fighting COVID-19, their health and quality of life will ...
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On 16 April, TIF and the European Hematology Association (EHA) successfully organised a highly interactive webinar entitled ”Thalassaemia/SCD and COVID-19: Possible risks and a proposal for a patient pathway during the pandemic”, which registered more than 700 participants from all over the world! Experts from Italy & Cyprus, inclufing TIF’s ...
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TIF has made an effort to put together a list of studies/clinical trials for treatments and vaccines about COVID-19, which is by no means exhaustive as this situation is ever-changing and research in the area is dramatically intensified. It must be noted that there are currently no FDA or EMA-approved ...
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TIF’s Expert Patient and long-standing collaborator and friend, Maria Hadjidemetriou, shares her inspiring and thought-provoking journey with thalassaemia and reflects on the lessons it has taught her. Click on the image to read it!
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