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Global Thalassaemia Review

Introduction

The first-ever TIF-developed Global Review of Thalassaemia!

The Global Thalassaemia Review was put together by TIF, in collaboration with the World Health Organisation (WHO), as a collection of independent reports, to document the existing situation with thalassaemia across the world in the context of the various components of public health, clinical, and social services, which are deemed essential for patients’ survival and wellbeing.

This video briefly introduces the Review’s key objectives and findings, highlighting the huge heterogeneity and inequality that people affected by thalassaemia still encounter in terms of access to quality healthcare services in many countries across the world.

Explore the Report

The 2024 edition of the Global Thalassaemia Review (GTR) presents an expanded and updated resource, reflecting the latest advancements in thalassaemia care, policy, and research.

This edition incorporates a continuous flow of newly published literature and official reports from global collaborators, including patient organizations, academia, industry, welfare organizations, and other official bodies, such as the World Health Organization (WHO). It also features newly added content, including Alpha Thalassaemia and Thalassaemia Intermedia (non-transfusion-dependent thalassaemia), to provide a more comprehensive review.

Furthermore, this edition offers valuable insights into the economic and social burden of thalassaemia, with new content focusing on the cost of disease and social determinants of health. It also includes updated perspectives on multidisciplinary care, blood safety, iron overload management, and global registries.

Infographics

The Global Thalassaemia Review’s Infographics underline the most substantial data on thalassaemia that this landmark report has exposed. They also summarize the key points of TIF’s call on national governments globally to safeguard the patients’ rights in health.

Availability

Blood insufficiency is experienced by more than 75% of patients in low- and middle- income countries.

Accessibility

More than 90% of the global patient population does not receive disease-specific social benefits.

Acceptability

Nationally coordinated and supported prevention programmes are absent in more than 80% of medium- and high- disease prevalence countries.

Quality

More than 60% of patients in low- and middle- income countries report recurring interruptions or postponements in their regular blood transfusions more than 15 times a year.

Progressive Realisation

In more than 90% of countries with medium- and high- disease prevalence, patients are still dependent on out of pocket expenses.

  • Availability

    Blood insufficiency is experienced by more than 75% of patients in low- and middle- income countries.

  • Accessibility

    More than 90% of the global patient population does not receive disease-specific social benefits.

  • Acceptability

    Nationally coordinated and supported prevention programmes are absent in more than 80% of medium- and high- disease prevalence countries.

  • Quality

    More than 60% of patients in low- and middle- income countries report recurring interruptions or postponements in their regular blood transfusions more than 15 times a year.

  • Progressive Realisation

    In more than 90% of countries with medium- and high- disease prevalence, patients are still dependent on out of pocket expenses.

Additional Material

WHO Director General Addresses the Global Thalassaemia Community

National Success Stories in the Prevention and Management of Thalassaemia

Milestones in Thalassaemia Treatment
by Prof John Porter

Global Thalassaemia Review High-level Event: The Premiere

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