Education
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PK Deficiency Resources Now Available On TIF’s Website
Recognizing the similarities of thalassaemia with other rare anaemias, particularly those affecting red blood cells, (e.g. PKD, SCD), and noting the absence of disease-specific united internationally coordinated patient organizations to…
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Coming Up This Week: ”Iron Monitoring in Thalassaemia” Webinar for Patients
Although chronic blood transfusion regimens have added decades to the lives of patients with thalassaemia, clinicians are now faced with increasingly complicated management challenges. The devastating effect of the accumulated…
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The 1st TIF Webinar for Medical Specialists Scheduled for 11 May
The 1st webinar for Medical Specialists organised in the context of TIF’s eThalEd online course has just arrived! Dr Antonio Piga, Professor of Paediatrics & Dean of the Medicine School at…
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TIF Publications
Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.
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TIF Publications
Gene Therapy in β-Thalassaemia and Other Haemoglobin Disorders (2019)
An educational leaflet aimed at improving the awareness and comprehension of people with thalassaemia and other haemoglobinopathies worldwide about gene therapy.
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TIF Publications
Bone Marrow Transplantation in β-Thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), also known as bone marrow transplantation (BMT).
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Εκπαίδευση
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TIF Publications
Guidelines for the Management of Non-Transfusion Dependent Thalassaemia (NTDT) (2nd Edition – 2017)
Ali T. Taher, MD PhD FRCP Khaled M. Musallam, MD PhD Maria Domenica Cappellini, MD FACP
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