For Patient & Parent Associations
The radical improvements in prevention and management of β-thalassaemia major that have been taking place in the last three decades, primarily in the West, have led to significant progress in thalassaemia prevention and treatment. Thanks to these improvements, patients with β-thalassaemia major can now have an increased survival rate and a better quality of life. TIF’s mission is to ensure this progress reaches and benefits all patients across the world.
The Thalassaemia International Federation (TIF) has developed a plethora of educational material and resources that provide concise, up to date information on all aspects of thalassaemia, from prevention to clinical management, and cover almost all age groups. Constantly monitoring international developments, TIF’s objective is to provide strong and solid knowledge about the latest advances in thalassaemia prevention and care to patients, their families, healthcare professionals and the community at large, and thus empower them to advocate for better quality of life for thalassaemia patients worldwide.
This section provides a variety of material and electronic resources of interest to patients and parents, including articles, books, e-courses, clinical trial updates, mobile apps, and opportunities to participate in awareness-raising activities.
Read about thalassaemia, clinical trial updates aiming to provide the final cure, patients’ stories and key publications.
A Guide to Establishing a Non-Profit Patient Support Organisation Patients’ Stories Patients’ Rights Read About Thalassaemia Read All About Thalassaemia (kids’ edition) Clinical trial updatesSickle Cell Disease TRANSFUSION for thalassaemia: I can help Useful Links Learn through videos
Participate & Learn
Discover exciting opportunities for your patients to participate & learn: contests, communication tools, mobile apps and online courses to help them become expert patients.
Thal e-Platform for PatientsThaliME app TIF Digital Library
Become a TIF member and enjoy additional benefits and opportunities to learn and develop.