THALIA2022
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Renzo Galanello
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News
NEW | Bluebirdbio Releases Resources For Patients On Gene Therapy Zynteglo®
To help people who are living with or caring for someone who has β-thalassaemia major get substantial information about Zynteglo®, bluebird bio, the company behind this ground-breaking therapy, has recently…
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THALASSAEMIA CHAMPIONS PODCAST | The 3rd And Final Episode Is Now Available
With open dialogue-formatted episodes, featuring thalassaemia patient advocates, mental health professionals, and other special guests, this show explores everything from psychosocial anxiety and relationship issues to treatment-related fears, while striving…
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NEW PUBLICATION | Short Guide For the Management of TDT (2nd Edition)
The 4th edition of the original full-length Guidelines, published in June 2022, includes a full review of the evidence supporting almost each recommendation for physicians to know all the facts…
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POLICY NEWS | TIF Issues Statement On The New EU Regulation For Blood, Tissues And Cells
This single Regulation, once approved by Member States, will replace all existing EU Directives on Blood, Tissues and Cells and will be equally applicable in the EU territory. The proposal…
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TIF’s EXECUTIVE DIRECTOR | Patient Blood Management Should Not Be Overlooked In EU’s Blood Revision
**Reposting from Euractiv’s website. How important are blood transfusions for thalassemia patients? Blood transfusion therapy constitutes the cornerstone of managing these patients, who, in the absence of management, develop…
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NEW PUBLICATION | TIF Recommendations Offer Guidance To Thalassaemia-Treating Physicians
The newly issued publication ‘Basic Recommendations in Brief for Treating Physicians’, based on and complementing the ‘Guidelines for the Management of Transfusion Dependent Thalassaemia (4th Edition – 2021)’, is an…
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NEW WHO REPORT | Effective TB, HIV, Viral Hepatitis Services For Refugees And Migrants Across The WHO European Region
International recommendations on effective services to treat tuberculosis (TB), HIV and viral hepatitis for refugees and migrants lack implementation across the WHO European Region, says a 2022 WHO report. Refugees…
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