THALIA
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INFOGRAPHICS | Mapping Blood Use in Patients with Thalassaemia Across the EU
Have You Ever Wondered How Much Blood is Consumed by Patients with Thalassaemia in EU Countries? To answer this question, the Thalassaemia International Federation (TIF) collected data from 15 EU…
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NEW PUBLICATION | Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia
This novel edition is an invaluable contribution in upgrading the care of individuals with NTDT, a condition that has been underestimated in importance and clinical significance for many years. TIF…
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NEW | Bluebirdbio Releases Resources For Patients On Gene Therapy Zynteglo®
To help people who are living with or caring for someone who has β-thalassaemia major get substantial information about Zynteglo®, bluebird bio, the company behind this ground-breaking therapy, has recently…
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POLICY NEWS | TIF Issues Statement On The New EU Regulation For Blood, Tissues And Cells
This single Regulation, once approved by Member States, will replace all existing EU Directives on Blood, Tissues and Cells and will be equally applicable in the EU territory. The proposal…
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TIF’s EXECUTIVE DIRECTOR | Patient Blood Management Should Not Be Overlooked In EU’s Blood Revision
**Reposting from Euractiv’s website. How important are blood transfusions for thalassemia patients? Blood transfusion therapy constitutes the cornerstone of managing these patients, who, in the absence of management, develop…
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NEW PUBLICATION | TIF Recommendations Offer Guidance To Thalassaemia-Treating Physicians
The newly issued publication ‘Basic Recommendations in Brief for Treating Physicians’, based on and complementing the ‘Guidelines for the Management of Transfusion Dependent Thalassaemia (4th Edition – 2021)’, is an…
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THALIA2018-2021 | Europe Is Seeing A Surge In Thalassaemia, Project Results Show
“Although thalassemia has always been endemic in Europe, especially in southern European countries such as Cyprus, Greece and Italy, the disease now knows no borders and constitutes an increasing health,…
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