THALIA

Hemoglobin Disorders In Europe: A Systematic Effort Of Identifying And Addressing Unmet Needs And Challenges By TIF
News

Hemoglobin Disorders In Europe: A Systematic Effort Of Identifying And Addressing Unmet Needs And Challenges By TIF

The recent population movement has led to a steady increase of carriers and patients with haemoglobin disorders, namely thalassaemia and sickle cell disease, in all countries of the European Union.…
Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”
News

Ali Sattarpour: ”Thalassaemia did not stop me from living a normal life”

In occasion of the International Thalassaemia Day 2021, Ali Sattarpour, 45, France, Fédération SOS GLOBI Vice President and TIF’s Thalassaemia Patient Advocacy Group (T-PAG) Member, recounts a life of struggles,…
THALIA App: The Skilled Digital Assistant of People with Thalassaemia and Sickle Cell Disease
News

THALIA App: The Skilled Digital Assistant of People with Thalassaemia and Sickle Cell Disease

Committed to continuing efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF introduces a novel mobile health application for patients with thalassaemia and sickle cell…
TIF Develops Mobile Application To Support Patients With Thalassaemia
News

TIF Develops Mobile Application To Support Patients With Thalassaemia

As part of its enduring efforts to develop useful tools for individuals with thalassaemia and haemoglobin disorders worldwide, TIF will soon introduce a novel mobile health application, named ‘’THALIA Mobile…
Revisiting The Use and Management of Blood in Europe in Times of Crisis and Beyond
News

Revisiting The Use and Management of Blood in Europe in Times of Crisis and Beyond

About 25 million blood transfusions are administered to patients every year throughout the European Union. What may come to mind to most people when thinking about blood transfusion is acute…
”Blood Transfusion in Thalassaemia”: Save the Date for the Next TIF Webinar for Medical Specialists
News

”Blood Transfusion in Thalassaemia”: Save the Date for the Next TIF Webinar for Medical Specialists

TIF´s brand new Webinar, entitled ”Blood Transfusion in Thalassaemia” and organised as part of the eThalED Course, will be held on Monday, 31 August 2020, 15:00-16:00 EEST / 13:00-14:00 BST.…
THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber
Patients’ stories

THOUGHTS ABOUT ME AND MY DAUGHTER by Melissa Basberber

´´Today I was asked to answer a survey and participate in an interview about how is it like to live with Beta Thalassaemia. It is so exciting and fun that…
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