News

November 23, 2017

INTERNATIONAL THALASSAEMIA DAY 2022: Be Aware. Share. Care

Visit the International Thalassaemia Day (ITD) 2022 page, now LIVE on the TIF website, to discover the idea behind the ”Be Aware. Share. Care.” theme, our fantastic campaign resources, the…

October 18, 2018

Patients’ perspective on Genome Editing

September 26, 2018

TIF calls for European collaboration on addressing the rare and chronic disease challenge at the 68th Session of the WHO Regional Committee for Europe

September 24, 2018

Patients need to be able to co-decide with their doctors about their treatment and quality of life

September 24, 2018

New injectable drug that reduces the need for frequent transfusions raises hope for thalassaemia patients

December 9, 2018

TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia

The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™) for transfusion-dependent thalassaemia patients, announced last week. The Federation’s distress…