News – Page 41

March 26, 2022

INTERNATIONAL THALASSAEMIA DAY 2022: Be Aware. Share. Care

Visit the International Thalassaemia Day (ITD) 2022 page, now LIVE on the TIF website, to discover the idea behind the ”Be Aware. Share. Care.” theme, our fantastic campaign resources, the…

October 18, 2018

Patients’ perspective on Genome Editing

September 26, 2018

TIF calls for European collaboration on addressing the rare and chronic disease challenge at the 68th Session of the WHO Regional Committee for Europe

September 24, 2018

Patients need to be able to co-decide with their doctors about their treatment and quality of life

September 24, 2018

New injectable drug that reduces the need for frequent transfusions raises hope for thalassaemia patients

December 9, 2018

THALIA Press Conference 2018

April 26, 2021

TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia

The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™) for transfusion-dependent thalassaemia patients, announced last week. The Federation’s distress…

February 28, 2023

INTERNATIONAL THALASSAEMIA DAY | The 2023 Theme Is Out!

February 24, 2022

INTERNATIONAL THALASSAEMIA DAY | The Theme For 2022 Has Been Announced!

February 21, 2022

RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases

Rare Disease Day is the movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease everywhere…