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Author Archives: tifwp

Clinical trial update (April 2017)

Important Note: The latest Clinical Trial updates can be found in the link below.   April 2017 update Luspatercept (ACE-536): A novel agent that increases haemoglobin by promoting erythropoiesis (differentiation and maturation of late-stage erythrocyte precursors). Phase 2 data in adults with β-thalassaemia shows sustained increase in haemoglobin levels with ...

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‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’

As from 2016, Thalassemia International Federation (TIF) has established a new kind of Award to be included in TIF’s Awards Scheme the ‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’. This Prize will be awarded on a biannual basis in the context of a  General Assembly or an International Conference ...

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Prof. Ali Taher awarded the CNRS – L Research Excellence Award 2016

The National Council for Scientific Research of Lebanon (CNRS – L) in recent years has established the prestigious Research Excellence Award, as a means to acknowledge research excellence and innovation. Thus, in recognition of Prof. Ali Taher’s research to the national, regional and international scientific community, he was presented with ...

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CONGRATULATIONS TO THALASSAEMIA PATIENT’S FRIEND SOCIETY (TPFS)!

We are delighted to share with you some exciting news received from the Ministry of Heath of Palestine! Many congratulations to the health authorities of the State of Palestine and the ‘Thalassaemia Patient’s Friend Society (TPFS) for the ongoing efforts in addressing challenges and needs of the Palestinian patients.

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International Thalassaemia Day 2013

2013 theme: The right for quality health care of every patient with Thalassaemia: major and beyond The treatment of thalassaemia intermedia was brought to the forefront of activities, and all national thalassaemia associations across the world and other patient support groups were invited to find out more about Non-Transfusion Dependent ...

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International Thalassaemia Day 2014

2014 theme: ‘Economic Recession: Observe – Join Forces – Safeguard Health’ The 2014 theme highlighted the need to support policy decisions that reduce health inequalities, with particular focus on countries affected by the financial and economic crisis. The global financial crisis has already had wide-reaching social, economic, and political impact, ...

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International Thalassaemia Day 2015

This year’s theme: Enhancing partnership towards patient-centred health systems: good health adds life to years Healthcare is changing. Patient needs are changing. Government regulations are changing. With an evolving landscape and overwhelming expectations, the transformation of healthcare systems is becoming all the more necessary to meet the needs of this ...

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International Thalassaemia Day 2016

We are delighted to present you the 2016 theme for the 8th of May activities which is: Access to Safe & Effective Drugs in Thalassaemia This year’s theme highlights the need to support policy decisions that safeguard health and reduce inequalities in the health field. TIF’s mission is to ensure ...

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