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Author Archives: tifwp

Patients for Patient Safety – Spring 2017

Patients’ stories of health care harm touch people’s hearts. The stories of the experiences of how patients and families can and do turn tragedy into compassion and motivation for change inspire people and help to raise awareness of the need to improve patient safety and health care quality.

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Clinical trial update (April 2017)

Important Note: The latest Clinical Trial updates can be found in the link below.   April 2017 update Luspatercept (ACE-536): A novel agent that increases haemoglobin by promoting erythropoiesis (differentiation and maturation of late-stage erythrocyte precursors). Phase 2 data in adults with β-thalassaemia shows sustained increase in haemoglobin levels with ...

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‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’

As from 2016, Thalassemia International Federation (TIF) has established a new kind of Award to be included in TIF’s Awards Scheme the ‘Prize for Outstanding Patient’s Contribution to TIF’s Activities’. This Prize will be awarded on a biannual basis in the context of a  General Assembly or an International Conference ...

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Prof. Ali Taher awarded the CNRS – L Research Excellence Award 2016

The National Council for Scientific Research of Lebanon (CNRS – L) in recent years has established the prestigious Research Excellence Award, as a means to acknowledge research excellence and innovation. Thus, in recognition of Prof. Ali Taher’s research to the national, regional and international scientific community, he was presented with ...

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We are delighted to share with you some exciting news received from the Ministry of Heath of Palestine! Many congratulations to the health authorities of the State of Palestine and the ‘Thalassaemia Patient’s Friend Society (TPFS) for the ongoing efforts in addressing challenges and needs of the Palestinian patients.

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International Thalassaemia Day 2013

2013 theme: The right for quality health care of every patient with Thalassaemia: major and beyond The treatment of thalassaemia intermedia was brought to the forefront of activities, and all national thalassaemia associations across the world and other patient support groups were invited to find out more about Non-Transfusion Dependent ...

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