On May 8, 2024, the global thalassaemia community will come together to observe International Thalassaemia Day.
We are excited to announce that this year’s theme is:
“Empowering Lives, Embracing Progress: Equitable and Accessible
Thalassaemia Treatment for All’’
The Power of International Thalassaemia Day
May 8, 2024, marks International Thalassaemia Day. The theme of the event this year is ”Empowering Lives, Embracing Progress: Equitable and Accessible Thalassaemia Treatment for All.”
With an estimated 100 million people worldwide carrying genes responsible for thalassaemia, and more than 300,000 babies born annually with severe forms of the disease, International Thalassaemia Day is a powerful call to raise awareness about this condition and its impact while celebrating the solidarity of the resilient thalassaemia community worldwide.
Our focus for 2024 is unambiguous: to ensure all individuals with thalassaemia, no matter their location or economic circumstance, receive access to accurate diagnosis, current and future treatments, and well-rounded care.
A Future Free from Boundaries
Current breakthroughs in cell and gene therapies are revolutionizing treatment for thalassaemia and other blood disorders, a momentum reflected in the recent authorizations of such therapies in the US, UK, and EU.
It’s time to unite efforts towards supporting unrestricted and equitable patient access to all approved, effective, and safe treatment options, regardless of cost, and help them live their lives to the fullest.
The 2024 theme also champions the empowerment of people living with thalassaemia by leveraging advances in treatment options and highlighting our shared responsibility to raise awareness and advocate tirelessly for meaningful, positive change.
Enforcing Access as a Human Right
Access to affordable medications and therapies is a fundamental human right, integral to the United Nations’ Sustainable Development Goals.
When it comes to thalassaemia, equitable access is crucial—not only to novel and transformative therapies but also to standard treatment—especially in lower- and middle-income countries where the condition is most prominent, yet millions still do not have access to essential disease-specific care.
WE CANNOT WAIT any longer for:
- Therapies, technologies, support, and care to be made available to all people with thalassaemia that require them.
- Governments to increase investments in healthcare, specifically focusing on thalassaemia care and prevention.
Join the International Thalassaemia Day 2024 movement and help change the lives of millions of people living with thalassaemia around the globe!
The official page for International Thalassaemia Day 2024 will be released soon!