EMPOWERING THE AMERICAS | Secure Your Spot at the 1st TIF Pan-American Conference & 2nd RAIN Summit
The Thalassaemia International Federation is delighted to announce the organisation of the “1st TIF Pan American Conference on Thalassaemia & Other Haemoglobin Disorders” and the “2nd RAIN Summit”, to take place from 11 to 13 July 2025, at the Hyatt Regency Crystal City, Washington D.C., US.
This landmark event, organized by the Thalassaemia International Federation (TIF) in collaboration with the Cooley’s Anemia Foundation (CAF) and supported by the Members of TIF’s Pan American Network for Haemoglobin Disorders (PANHD), aims to bring together healthcare professionals, researchers, policymakers, caregivers, and, most importantly, patient advocates, to drive meaningful discussions on the latest advancements in treatment, care, and policy for haemoglobin disorders, while fostering collaboration and strengthening the patient voice across the Americas.
Register Here Registration Details Preliminary Programme Call for Abstracts Call for Case Presentations
The Conference will feature two parallel programmes: 
📍 Scientific Programme: This programme is designed for healthcare professionals and will focus on multidisciplinary care, new treatment approaches, innovative therapies, and emerging challenges in the field. Attendees will have the opportunity to engage with leading experts, participate in interactive sessions, and gain insights into the latest research and clinical practices.
📍 Patient and Parent Programme: This programme aims to empower, educate, and connect patient communities across the Americas. It will provide valuable information on managing hemoglobin disorders, advocacy strategies, and ways to improve healthcare access. Participants will have the chance to share their experiences, learn from others, and build a supportive network.
Following the Conference, the 2nd RAIN (Rare Anaemias International Network) Summit will convene key stakeholders, including medical experts, advocacy groups, and policymakers. The summit will focus on strategic initiatives for improving care, access, and research for rare anaemias at both regional and global levels. It will provide a platform for collaboration and the exchange of ideas to drive sustainable change.
Programme Highlights
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- Advances in Thalassaemia and Sickle Cell Disease Management: Explore the latest developments in the management of thalassaemia and sickle cell disease, including new treatment protocols and patient care strategies.
- Gene and Cell-Based Therapies: Future Prospects: Delve into the future of gene and cell-based therapies, examining their potential to revolutionize the treatment of haemoglobin disorders.
- Multidisciplinary Care Models for Haemoglobinopathies: Learn about effective multidisciplinary care models that integrate various healthcare disciplines to provide comprehensive care for patients with haemoglobinopathies.
- Health Equity and Addressing Unmet Needs: Discuss strategies to address health disparities and unmet needs in the treatment of haemoglobin disorders, ensuring equitable access to care for all patients.
- Capacity Building for Patients: Focus on initiatives to build capacity among patients and patient organizations, empowering them to advocate for better healthcare and support services.
- Regional and Global Policy Initiatives for Improved Access to Care: Examine policy initiatives aimed at improving access to care for patients with haemoglobin disorders, both regionally and globally.
- RAIN Summit – Regional Collaboration for Sustainable Change in Rare Anaemias: Participate in discussions on regional collaboration to drive sustainable change in the care and treatment of rare anaemias.
Who Should Attend?
🙍♂️ Patients and Patient/Parent Organizations: Gain valuable knowledge and support, connect with other patients and families, and learn about advocacy strategies.
👨🏻⚕️ Healthcare Professionals and Medical Specialists: Stay updated on the latest research, treatment approaches, and clinical practices in the field of haemoglobin disorders.
👩🔬 Academics, Researchers, and Scientists: Share your research, collaborate with peers, and explore new avenues for advancing the understanding and treatment of haemoglobin disorders.
👨🏻💼 Policymakers and Health Authorities: Engage in discussions on policy initiatives and strategies to improve healthcare access and outcomes for patients with haemoglobin disorders.
👩💻 Industry Representatives: Discover opportunities for collaboration, innovation, and investment in the field of haemoglobin disorders and rare anaemias.
For further information, please contact: tif2025@thalassaemia.org.cy
