Patients
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TIF News
PUBLICATIONS | Nutrition Guide for Patients with Thalassemia & PKD
Nutrition holds a significant position in the lives of individuals afflicted with thalassaemia and other hereditary anaemias. As part of its enduring commitment to generating guidelines and educational materials for…
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Events
World Patient Safety Day 2023 | 17 September 2023
Evidence shows that when patients are treated as partners in their care, significant gains are made in safety, patient satisfaction and health outcomes. By becoming active members of the health…
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News
TIF2023 | 16th International Conference on Thalassaemia & Haemoglobinopathies, November 3-5
The Conference, organized in collaboration with the Federation of Malaysia Thalassaemia Societies, the Malaysia Hematology Society and the Malaysian Association of Paediatric Haematology & Oncology, and with the support of…
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News
NEW SURVEY | Thalassaemia Care Delivery From A Patient Perspective
The survey focuses on capturing the patient perspective on thalassaemia care delivery in various countries. This initiative by TIF aims to gather valuable insights into the experiences and challenges faced…
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News
PUBLICATION | Travel Guidance for Patients and Families
Welcome to ‘Travel Guidance for Patients & Families’, on the newest TIF’s publications! This practical handbook is intended specifically for travelers with thalassaemia, sickle cell disease, and rare anaemias. Our…
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News
CALL TO ALL PATIENTS | Your Voice Matters in Research!
Today, we invite you to be an active participant in ensuring that research that takes place is aligned with your specific requirements and challenges. Your firsthand experiences as patients offer…
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News
EMERGENCY APPEAL | TIF Rallies to Provide Earthquake Relief in Turkey and Syria
Among these people, the Thalassaemia International Federation (TIF) estimates that at least 2,000 patients with thalassaemia have been affected, 70% of whom are children and adolescents under the age of…
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News
TIF2023 | The Top International Conference On Thalassaemia Returns This November
The Conference, jointly organised by TIF, the Malaysian Haematology Society, and the Federation of Malaysia Thalassaemia Societies, will feature two parallel programmes – a Scientific Programme for Healthcare Professionals and…
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News
TOP STORY | EMA Validates Vertex’s/CRISPR Submission Of Exa-Cel For β-Τhal And SCD
The Marketing Authorization Application (MAA) for exagamglogene autotemcel (exa-cel), marks the first regulatory submission in the EU for a CRISPR-based medicine. Through the validation, exa-cel is indicated for the…
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News
DRUGS | EMA Starts Pilot To Collect Information On Ongoing/Potential Shortages
To help address this issue, the European Medicines Agency (EMA) is starting a pilot to collect information on ongoing or potential shortages, according to the following criteria: The shortage…
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