Patients

TIF’s 1st PODCAST SERIES IS LIVE | Thalassaemia Champions – The Mental Health Sessions
News

TIF’s 1st PODCAST SERIES IS LIVE | Thalassaemia Champions – The Mental Health Sessions

About the Episode 1 In the first episode of this 3-part podcast series, entitled ‘Dealing With Psychological Distress’, Hosts George Constantinou, TIF Board Member, and Expert Thalassaemia Patient, and Maria…
INTERNATIONAL THALASSAEMIA DAY | 8 May 2022
News

INTERNATIONAL THALASSAEMIA DAY | 8 May 2022

Every single one of us has the ability to make a difference, large or small, and together we can make real progress in raising valuable awareness about thalassaemia and its…
NEW WEBINAR | Exploring The Value Of Patient Advocacy For Better Thalassaemia Care
News

NEW WEBINAR | Exploring The Value Of Patient Advocacy For Better Thalassaemia Care

The objective of this meeting, which brings together eminent haemoglobinopathies specialists and expert patient advocates from Italy and other countries, is to highlight the pivotal value of advocacy in enabling…
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Patients’ stories

IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas

Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I had met for the first time only minutes earlier. But…
RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases
News

RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases

Rare Disease Day is the movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease everywhere…
Mitapivat Receives FDA Approval For Haemolytic Anaemia From Pyruvate Kinase Deficiency
Clinical News

Mitapivat Receives FDA Approval For Haemolytic Anaemia From Pyruvate Kinase Deficiency

The US Food and Drug Administration (FDA) has announced the approval of Mitapivat (PYRUKYND®) tablets as treatment for haemolytic anemia in adults with pyruvate kinase (PK) deficiency. The oral PK…
SCD Drug Oxbryta Receives CHMP Positive Opinion For Approval In The EU
Clinical News

SCD Drug Oxbryta Receives CHMP Positive Opinion For Approval In The EU

The Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) adopted a positive opinion recommending marketing authorization for Oxbryta® (voxelotor) tablets for the treatment of hemolytic…
THALIA 2018-2021: Europe Is Seeing A Surge In Thalassaemia, Project Results Show
News

THALIA 2018-2021: Europe Is Seeing A Surge In Thalassaemia, Project Results Show

“Although thalassemia has always been endemic in Europe, especially in southern European countries such as Cyprus, Greece and Italy, the disease now knows no borders and constitutes an increasing health,…
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