TIF News
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NEW SURVEY | Thalassaemia Care Delivery From A Patient Perspective
The survey focuses on capturing the patient perspective on thalassaemia care delivery in various countries. This initiative by TIF aims to gather valuable insights into the experiences and challenges faced…
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PUBLICATION | Travel Guidance for Patients and Families
Welcome to ‘Travel Guidance for Patients & Families’, on the newest TIF’s publications! This practical handbook is intended specifically for travelers with thalassaemia, sickle cell disease, and rare anaemias. Our…
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OPINION | Proposed SoHO Legislation Could Transform Blood Sustainability in Europe
In this article, she reflected on the importance of EU’s SoHO Regulation – read TIF’s Position Paper on the Regulation here – proposing updated rules on blood, tissue and cells,…
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AWARDS | Health Ministry Honours Mr Panos Englezos, TIF’s President
The Health Ministry of Cyprus honoured the outgoing chairman of the National Thalassaemia Committee and President of the Thalassaemia International Federation (TIF), Mr. Panos Englezos, with a prize-giving ceremony. The…
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EVENT | Rare Anaemias International Network (RAIN) Members Meeting – 16 June 2023
The members meeting was open to all RAIN members and their individual networks. This Meeting sought to: provide an update and overview of the RAIN Steering Committee and Scientific Advisory…
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TIFLIX | Taking Thalassaemia Education To The Next Level
Watch Unlimited Videos from World-Renowned Experts This brand-new video library powered by TIF gathers a wealth of audiovisual content on everything you need to know about thalassaemia and sickle cell disease, presented to…
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THE ECONOMIST | Dr Androulla Eleftheriou Discusses the Future of Thalassaemia Care
As genomics research moves from the bench to the bedside, clinical applications of genomics will affect even more areas of medicine, improving disease prevention, diagnosis, and treatment. Today, it is…
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