TIF News
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Take Action For The International Thalassaemia Day 2021
INTERNATIONAL THALASSAEMIA DAY 2021 – 8 MAY ”Addressing Health Inequalities Across the Global Thalassaemia Community” Each year, individuals around the globe band together for one day of pure and empowering…
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NEW PUBLICATION | TIF Recommendations Offer Guidance To Thalassaemia-Treating Physicians
The newly issued publication ‘Basic Recommendations in Brief for Treating Physicians’, based on and complementing the ‘Guidelines for the Management of Transfusion Dependent Thalassaemia (4th Edition – 2021)’, is an…
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INTERNATIONAL THALASSAEMIA DAY | 8 May 2022
Every single one of us has the ability to make a difference, large or small, and together we can make real progress in raising valuable awareness about thalassaemia and its…
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NUOVO WEBINAR: Il Valore Della Patient Advocacy Per Migliorare La Cura Delle Emoglobinopatie
L’obiettivo di questo incontro, che riunisce eminenti specialisti in emoglobinopatie ed esperti difensori dei pazienti provenienti dall’Italia e da altri paesi, è quello di evidenziare il valore fondamentale della patient…
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ROSARIO’S STORY | A True Champion of Resilience
Rosario was more than eager to recount this wonderful experience to TIF for the International Thalassaemia Day 2022 and share some inspiring messages with his peers. “It is important to…
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INTERNATIONAL THALASSAEMIA DAY 2022: Be Aware. Share. Care
Visit the International Thalassaemia Day (ITD) 2022 page, now LIVE on the TIF website, to discover the idea behind the ”Be Aware. Share. Care.” theme, our fantastic campaign resources, the…
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TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia
The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™) for transfusion-dependent thalassaemia patients, announced last week. The Federation’s distress…
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