News
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Living with Transfusion-Dependent β-Thalassaemia (TDT)
In its most severe form and without adequate care, thalassaemia can be lethal in early childhood, and although International Thalassaemia Day has come and gone, awareness is paramount. Andrew…
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International Thalassaemia Day: More than 1 in 10 Cypriots carriers of β-thalassaemia
A comprehensive article by Carsten W. Lederer (PhD), Petros Patsali (PhD), Panayiota Papasavva (MD, MSc), Thessalia Papasavva (PhD) and Marina Kleanthous (PhD, Head of the MGTD), on the thalassaemia…
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Corporate Reputation of Pharma Companies for 2018 – The Patients’ Perspective
What did 1,500 patient groups from different countries and therapy areas think of pharmaceutical companies in 2018? To what extent did these companies meet patients’ expectations? A recent survey…
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Gene Therapy for β-Thalassaemia Approaches European Market Approval
Gene therapy continues to evolve with new emerging treatments finally reaching its promised potential: providing a one-time lifelong cure for even the rarest and most severe of genetic disorders. TIF’s…
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World Hemophilia Day 2019
World Hemophilia Day is an international awareness day for hemophilia and other bleeding disorders. It is held annually on April 17, date of the birthday of Frank Schnabel, founder of…
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