Catherine Skari
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Aug- 2021 -26 August
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24 AugustNews
TIF Position Statement: Demanding Access To Existing And Upcoming Gene Therapies For β-Thalassaemia
The Thalassaemia International Federation (TIF) is expressing its grave disappointment over the recent announcement of Bluebird Bio regarding the “wind-down”…
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19 AugustNews
PYRUVATE KINASE DEFICIENCY | TIF Issues Charter of Priorities For The Global PKD Patient Community
This newly launched document aspires to bring together available information about PKD in an effort to identify gaps, and to…
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19 AugustNews
MITAPIVAT | FDA Grants Priority Review To New Drug For Pyruvate Kinase Deficiency
The NDA was granted a Priority Review designation and has been given a Prescription Drug User Fee Act (PDUFA) action…
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18 AugustNews
TIF Presents The Federation’s Annual Report For 2020
“Our commitment to unite the patient voice and to advocate at the highest possible levels for equal access to all…
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17 AugustNews
CDC, FDA Authorize Third Dose Of COVID-19 Vaccines For The Immunocompromised In The US
The U.S. Food and Drug Administration (FDA) and the U.S. Centers for Disease Control and Prevention (CDC) have both recommended…
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Jul- 2021 -30 JulyTIF News
TIF e-Academy: Reimagining Thalassaemia and Sickle Cell Disease Education
Read. Learn. Empower. The Thalassaemia International Federation´s internationally acclaimed Educational Programme is a fundamental component of TIF´s work and is…
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Jun- 2022 -2 JuneNews
NEW EVENT | Register Now For The 1st PIBA Members’ Meeting!
Watch the Full PIBA Meeting Video Recording HERE.
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Jul- 2021 -30 JulyNews
Global Blood Submits US Application For Expanded Use Of SCD Drug, Oxbryta, In Patients Aged 4-11 Years
Children with sickle cell disease (SCD) as young as age 4 could be prescribed Oxbryta (Voxelotor) if the U.S. Food and Drug Administration…
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28 JulyNews
World Hepatitis Day 2021: Hep Can’t Wait!
July 28 marks World Hepatitis Day 2021. World Hepatitis Day (WHD) is observed every year on 28 July to raise…
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