Catherine Skari
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Sep- 2021 -22 September
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21 SeptemberWebinars
Navigating Love, Relationships & Thalassaemia by Laurice Levine
Mrs Laurice Levine is a TIF Thalassaemia Patient Advocate, Member of TIF TPAG, US, Thalassaemia Outreach Liaison & Independent Medical…
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20 SeptemberNews
WHO SEAR Publishes Desk Review of Haemoglobinopathies in the South-East Asia Region
In an effort to understand the prevalence of thalassaemic syndromes and the existent blood supply system available within each country…
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16 SeptemberNews
World Patient Safety Day 2021: Act Now For Safe And Respectful Childbirth
With the world still battling with the COVID-19 pandemic and the inequities that surfaced as a result, the most vulnerable…
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16 SeptemberNews
TIF Takes Active Part In The 71st Session of the WHO Regional Committee for Europe
TIF has participated in the 71st session of the WHO Regional Committee for Europe between 13–15 September 2021, which gathered…
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9 SeptemberNews
EdiGene Announces First Patient Enrolment In Phase I Clinical Trial Of Gene-editing Therapy ET-01 For Patients With β-Thalassaemia
The Chinese biotechnology company EdiGene announced yesterday that the first patient was enrolled in the multicentre, Phase I clinical study…
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Aug- 2021 -26 August
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24 AugustNews
TIF Position Statement: Demanding Access To Existing And Upcoming Gene Therapies For β-Thalassaemia
The Thalassaemia International Federation (TIF) is expressing its grave disappointment over the recent announcement of Bluebird Bio regarding the “wind-down”…
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19 AugustNews
PYRUVATE KINASE DEFICIENCY | TIF Issues Charter of Priorities For The Global PKD Patient Community
This newly launched document aspires to bring together available information about PKD in an effort to identify gaps, and to…
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19 AugustNews
MITAPIVAT | FDA Grants Priority Review To New Drug For Pyruvate Kinase Deficiency
The NDA was granted a Priority Review designation and has been given a Prescription Drug User Fee Act (PDUFA) action…
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