Catherine Skari
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May- 2020 -27 MayTIF Publications
COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)
This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).
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25 MayNews
WORLD BLOOD DONOR DAY 2020: Give blood and make the world a healthier place
On 14 June 2020 WHO and all countries worldwide will celebrate World Blood Donor Day! The campaign theme for…
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22 MayPatients’ stories
IGNORANCE ISN’T BLISS by Jensen Chan
”Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never…
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22 MayNews
”Why I decided to increase awareness about thalassaemia in Singapore”: The story of Jensen Chan
”I was shocked at the huge discrepancy between how common thalassaemia is and how few people actually know about it.”…
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22 MayNews
FDA Approves New Formulation for Ferriprox (Deferiprone) Twice-a-Day Tablets
Chiesi Global Rare Diseases, a business unit of Chiesi Farmaceutici S.p.A., today announced that the U.S. Food and Drug Administration…
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20 MayWebinars
Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients’ Perspective
9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with…
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20 May
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20 May
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19 MayWebinars
COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe
Patient Advocates from Greece, Germany, the UK, the Netherlands, Romania and other countries of the WHO European Region exchange thoughts…
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19 MayNews
COVID-19 & Haemoglobin Disorders: The Cyprus Webinar
In the context of TIF’s intensive efforts for the accurate and timely information of individuals with thalassaemia and sickle cell…
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