Catherine Skari
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May- 2020 -22 MayNews
”Why I decided to increase awareness about thalassaemia in Singapore”: The story of Jensen Chan
”I was shocked at the huge discrepancy between how common thalassaemia is and how few people actually know about it.”…
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22 MayNews
FDA Approves New Formulation for Ferriprox (Deferiprone) Twice-a-Day Tablets
Chiesi Global Rare Diseases, a business unit of Chiesi Farmaceutici S.p.A., today announced that the U.S. Food and Drug Administration…
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20 MayWebinars
Accessibility & Affordability of Novel Therapies for Thalassaemia: The Patients’ Perspective
9 patients with thalassaemia, members of TIF’s Patient Advocacy Group for Thalassaemia and Sickle Cell Disease (T-PAG), are discussing with…
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20 May
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20 May
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19 MayNews
COVID-19 & Haemoglobin Disorders: A TIF Webinar with Patient Advocates from Europe
Patient Advocates from Greece, Germany, the UK, the Netherlands, Romania and other countries of the WHO European Region exchange thoughts…
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19 MayNews
COVID-19 & Haemoglobin Disorders: The Cyprus Webinar
In the context of TIF’s intensive efforts for the accurate and timely information of individuals with thalassaemia and sickle cell…
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16 MayTIF Publications
COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)
A document seeking to offer a risk level classification for thalassaemia and SCD patients in relation to the ongoing COVID-19…
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16 MayNews
FDA Grants RMAT Designation to CTX-001™ for the Treatment of Severe TDT β-Thalassaemia & SCD
CRISPR Therapeutics and Vertex Pharmaceuticals announced that the U.S. Food and Drug Administration (FDA) granted Regenerative Medicine Advanced Therapy (RMAT) designation to CTX-001, an investigational, autologous, Gene Editing hematopoietic stem…
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16 MayNews
TIF’s Latest Guide for the COVID-19 Pandemic is Going Public on the International Thalassaemia Day 2020
As the online celebrations for the International Thalassaemia Day 2020 are at their peak, TIF decided to publish today as a gift…
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