Catherine Skari

TIF and Hemanext® Inc. Announce New Strategic Alliance

TIF, a worldwide organization dedicated to ensuring equal access to quality healthcare for every patient with thalassaemia and other haemoglobin…

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TIF Launches Online Petition to Promote ”Equitable Access to Safe and Adequate Blood”

A few days before the celebration of the World Blood Donor Day 2020, TIF has launched an online petition, co-signed…

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FDA Grants Orphan Drug Designation to Mitapivat for Treatment of Thalassaemia

Agios Pharmaceuticals Inc. announced that the U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation to the company’s…

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Explaining Gene Therapy in Thalassaemia (2020)

The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy…

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TIF Issues Position Statement in Honour of the World Blood Donor Day 2020

There is one thing that definitely makes us heroes: giving blood.  It is a life-saving gesture that any of us…

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Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a…

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JUST LANDED: The ”Prevention of Inherited Diseases – The Example of β-Thalassaemi” Educational Brochure by TIF

Prevention is the only measure that can drastically reduce the incidencies of severe haemoglobin disorders, such as β-thalassaemia. It is also what…

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COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document compiles information about the coronavirus pandemic specifically addressed to patients with sickle cell disease (SCD).

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WORLD BLOOD DONOR DAY 2020: Give blood and make the world a healthier place

On 14 June 2020 WHO and all countries worldwide will celebrate World Blood Donor Day!   The campaign theme for…

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IGNORANCE ISN’T BLISS by Jensen Chan

”Growing up as an avid member of the The Boys’ Brigade, my younger brother, Neilsen, was physically active and never…

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