Catherine Skari

CALL TO ALL PATIENTS | Your Voice Matters in Research!

Today, we invite you to be an active participant in ensuring that research that takes place is aligned with your…

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EHA2023 | Crovalimab Appears Non-inferior to Eculizumab in PNH, Data Shows

At the 2023 EHA Congress, researchers presented data from the ongoing COMMODORE 2 study, which was designed to determine whether…

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Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

Thalassemia is an inherited blood disorder affecting hemoglobin synthesis which leads to chronic hemolysis that can reduce the quality of…

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OPINION | Proposed SoHO Legislation Could Transform Blood Sustainability in Europe

In this article, she reflected on the importance of EU’s SoHO Regulation – read TIF’s Position Paper on the Regulation…

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AWARDS | Health Ministry Honours Mr Panos Englezos, TIF’s President

The Health Ministry of Cyprus honoured the outgoing chairman of the National Thalassaemia Committee and President of the Thalassaemia International…

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Epidemiology of Clinically Significant Forms of alpha- and beta-Thalassemia: A Global Map of Evidence and Gaps

This systematic literature review assessed the global prevalence and birth prevalence of clinically significant forms of alpha- and beta-thalassemia. Embase,…

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GENE THERAPY | FDA Decision on Lovo-cel for SCD Now Expected by Year’s End

The regulatory agency has agreed to review an application from lovo-cel’s developer, Bluebird Bio, requesting the gene therapy’s approval for SCD…

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PREGNANCY | Study Results Indicate AIHA in Pregnant Women Is Manageable

Among these patients, however, close monitoring, the administration of therapy when needed, and the awareness of potential complications, both for…

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Sickle Cell Disease Is 11 Times More Deadly Than Previously Recorded, Suggests Study

A new study suggests the number of deaths due to sickle cell disease is 11 times higher than what is…

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EHA2023 | MASP-3 Inhibitor Demonstrates Clinical Efficacy in Paroxysmal Nocturnal Hemoglobinuria

OMS906 led to transfusion independence in the majority of patients with PNH enrolled so far on the trial (n =…

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