Catherine Skari
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Jun- 2023 -7 JuneScientific Literature
Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease
Importance: Pain related to sickle cell disease (SCD) is complex and associated with social determinants of health. Emotional and stress-related effects…
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7 JuneScientific Literature
Venous Thromboembolism Prophylaxis in Sickle Cell Disease: A Multicenter Cohort Study of Adolescent Inpatients
Patients with sickle cell disease (SCD) are predisposed to a hypercoagulable state. Despite the increased risk of venous thromboembolism in…
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1 JuneScientific News
Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease
Pain affects sickle cell disease (SCD) patients’ quality of life and functional ability. Βut what is the association of educational…
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1 June
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May- 2023 -26 May
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25 MayNews
EVENT | Rare Anaemias International Network (RAIN) Members Meeting – 16 June 2023
The members meeting was open to all RAIN members and their individual networks. This Meeting sought to: provide an update…
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19 MayScientific News
NHS to Deliver World-First Blood-Matching Test to Aid Thalassemia and SCD Patients
National Health Services (NHS) of England is likely to introduce the world’s first genotyping blood test which could help ease…
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19 May
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12 MayScientific Literature
Health-related Quality of Life in Patients with β-Thalassemia: Data from the Phase 3 BELIEVE Trial of Luspatercept
Background: Patients with transfusion-dependent (TD) β-thalassemia require long-term red blood cell transfusions (RBCTs) that lead to iron overload, impacting health-related…
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12 MayScientific Literature
Longitudinal study of ICET-A on Glucose Tolerance, Insulin Sensitivity and β-cell Secretion in Eleven β-Thalassemia Major Patients with Mild Iron Overload
Background: Iron chelation therapy (ICT) is the gold standard for treating patients with iron overload, though its long-term effects are…
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