Catherine Skari
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Jul- 2023 -31 JulyScientific Literature
Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease
Although ≈95% of children with sickle cell disease (SCD) will reach adulthood in high-income settings, adolescents and young adults (AYA) face…
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31 JulyScientific Literature
Αlpha-thalassemia Genotypes in Vietnam: A Report of 12,030 Pregnant Women and Their Husbands Performing Prenatal Screening for Alpha-thalassemia
BACKGROUND: Αlpha (α)-thalassemia is a global health concern, and improving screening methods is crucial for disease prevention. This study aimed…
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31 JulyScientific Literature
Low-dose Warfarin May Be a Life-saving Treatment Regimen in Sickle Cell Diseases
The sickled or just hardened red blood cells (RBCs)-induced capillary endothelial damage initiates at birth, and terminates with multiorgan failures…
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30 JulyScientific News
Scientists Develop Safer Method for Gene-Editing Therapy Delivery
Researchers have found a new method of delivering gene-editing medicines to persons with blood illnesses such as thalassaemia and sickle…
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29 JulyNews
NEW SURVEY | Thalassaemia Care Delivery From A Patient Perspective
The survey focuses on capturing the patient perspective on thalassaemia care delivery in various countries. This initiative by TIF aims…
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28 JulyScientific News
Deferiprone Reduces Iron Overload in Young Patients With Transfusion-Dependent Beta-Thalassaemia
In young patients with transfusion-dependent beta-thalassaemia (TDT), the use of early-start deferiprone appeared to be well tolerated and was associated…
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27 JulyNews
NEWS | WHO Updates Essential Medicines List, Adds New Medicines for Thalassaemia
Until recently, the WHO EML recommended only deferoxamine for iron chelation, limiting patients’ access to other crucial pharmacological alternatives for…
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26 JulyNews
CLINICAL TRIALS | Positive Results Found with Transplant for Patients with Aplastic Anemia
The findings were reported in the journal Blood. The trial’s cohort included 35% of patients from underrepresented racial and/or ethnic…
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22 JulyScientific News
Epidemiology of Clinically Significant Forms of Alpha- and Beta Thalassemia: A Global Map of Evidence and Gaps
This systematic study looked at the worldwide and birth prevalence of clinically relevant types of alpha- and beta-thalassaemia. Searches were…
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19 JulyTIF News
PUBLICATION | Travel Guidance for Patients and Families
Welcome to ‘Travel Guidance for Patients & Families’, on the newest TIF’s publications! This practical handbook is intended specifically for…
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