Catherine Skari

POLICY NEWS | TIF Joins Important Policy Event in Brussels Ahead of New EU Rules on Blood, Tissue, Cells Approval

EVENT | Rare Anaemias International Network (RAIN) Members Meeting – 16 June 2023

The members meeting was open to all RAIN members and their individual networks. This Meeting sought to: provide an update…

NHS to Deliver World-First Blood-Matching Test to Aid Thalassemia and SCD Patients

National Health Services (NHS) of England is likely to introduce the world’s first genotyping blood test which could help ease…

RENZO GALANELLO FELLOWSHIP PROGRAMME | Applications Open Until 23 June!

Health-related Quality of Life in Patients with β-Thalassemia: Data from the Phase 3 BELIEVE Trial of Luspatercept

Background: Patients with transfusion-dependent (TD) β-thalassemia require long-term red blood cell transfusions (RBCTs) that lead to iron overload, impacting health-related…

Longitudinal study of ICET-A on Glucose Tolerance, Insulin Sensitivity and β-cell Secretion in Eleven β-Thalassemia Major Patients with Mild Iron Overload

Background: Iron chelation therapy (ICT) is the gold standard for treating patients with iron overload, though its long-term effects are…

Treating Chronic Pain in Sickle Cell Disease: The Need for a Biopsychosocial Model

Chronic pain is the most common complication affecting adults with sickle cell disease (SCD). Pain profoundly affects people’s quality of…

Management of Luspatercept Therapy in Patients with Transfusion-dependent β-Thalassaemia

Patients with transfusion-dependent β-thalassaemia require lifelong, regular red blood cell transfusions for survival; however, frequent blood transfusions are associated with…

Applications of Αrtificial Ιntelligence in Τhalassemia: A Comprehensive Review

Thalassemia is an autosomal recessive genetic disorder that affects the beta or alpha subunits of the hemoglobin structure. Thalassemia is…