Catherine Skari

Impact of Imatinib on Reducing the Painful Crisis in Patients with Sickle Cell Disease

Introduction: Sickle cell disease (SCD) is a common hemoglobinopathy worldwide that causes painful crises and hospitalization of patients. These attacks decrease survival and cause…

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Health-Related Quality-of-Life Profile of Pediatric Patients with β-Thalassemia after Hematopoietic Stem Cell Transplantation

Matched hematopoietic stem cell transplantation (HSCT) is a feasible and curative treatment in pediatric patients with beta thalassemia major (β-TM).…

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Modelling the Public Health Impact of Voxelotor in the Management of Sickle Cell Disease in France

Sickle cell disease (SCD) is an inherited blood disorder in which sickle hemoglobin (HbS) polymerizes, leading to red blood cell…

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The Danish National Haemoglobinopathy Screening Programme: Report From 16 Years of Screening in a Low-prevalence, Non-endemic Region

The Danish national haemoglobinopathy screening programme seeks to determine parental haemoglobinopathy carrier state antenatally. In this retrospective register based study,…

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Analysis of the Pregnancy Status and Outcomes of Pregnant Women with α-Thalassemia: A Retrospective Clinical Study

Background: The prevalence of α-thalassemia is high in Guangxi, and its co-occurrence with pregnancy may impede maternal system functions, with…

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WEBINAR | Official Launch of TIF’s Nutrition Guidelines in Thalassaemia and PKD

This essential guide has been eagerly awaited by healthcare professionals and patients alike, and we are pleased to invite you…

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BLOOD TRAΝSFUSION THERAPY | FDA Approves Hemanext ONE®

This revolutionary technology sets a new standard in RBC processing and storage by limiting oxygen in the storage environment, thereby…

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How I Τreat Non-Transfusion-Dependent β-Thalassemia

The intricate interplay of anemia and iron overload under the pathophysiological umbrella of ineffective erythropoiesis in non-transfusion-dependent β-thalassemia (NTDT) results…

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WEBINAR | Haemoglobin Disorders and EU Health Policies, 21 September 2023

Designed for patients and their families, these webinars aim to foster national advocacy for the improvement of service delivery. The…

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Corticosteroid Use in Pregnant Women with SCD Doubles Risk of Severe VOCs

According to a French study, corticosteroids used during pregnancy are a risk factor for more severe vaso-occlusive crises (VOCs) in…

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