Catherine Skari

Scientists Develop Safer Method for Gene-Editing Therapy Delivery

Researchers have found a new method of delivering gene-editing medicines to persons with blood illnesses such as thalassaemia and sickle…

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NEW SURVEY | Thalassaemia Care Delivery From A Patient Perspective

The survey focuses on capturing the patient perspective on thalassaemia care delivery in various countries. This initiative by TIF aims…

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Deferiprone Reduces Iron Overload in Young Patients With Transfusion-Dependent Beta-Thalassaemia

In young patients with transfusion-dependent beta-thalassaemia (TDT), the use of early-start deferiprone appeared to be well tolerated and was associated…

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NEWS | WHO Updates Essential Medicines List, Adds New Medicines for Thalassaemia

Until recently, the WHO EML recommended only deferoxamine for iron chelation, limiting patients’ access to other crucial pharmacological alternatives for…

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CLINICAL TRIALS | Positive Results Found with Transplant for Patients with Aplastic Anemia

The findings were reported in the journal Blood. The trial’s cohort included 35% of patients from underrepresented racial and/or ethnic…

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Epidemiology of Clinically Significant Forms of Alpha- and Beta Thalassemia: A Global Map of Evidence and Gaps

This systematic study looked at the worldwide and birth prevalence of clinically relevant types of alpha- and beta-thalassaemia. Searches were…

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PUBLICATION | Travel Guidance for Patients and Families

Welcome to ‘Travel Guidance for Patients & Families’, on the newest TIF’s publications! This practical handbook is intended specifically for…

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CALL TO ALL PATIENTS | Your Voice Matters in Research!

Today, we invite you to be an active participant in ensuring that research that takes place is aligned with your…

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EHA2023 | Crovalimab Appears Non-inferior to Eculizumab in PNH, Data Shows

At the 2023 EHA Congress, researchers presented data from the ongoing COMMODORE 2 study, which was designed to determine whether…

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Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

Thalassemia is an inherited blood disorder affecting hemoglobin synthesis which leads to chronic hemolysis that can reduce the quality of…

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