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NEW WEBINAR | Empowering Patient Leaders: Understanding EU Health Policies

Join us for an upcoming webinar on EU Health Policies, specifically tailored for patient leaders and citizens of the European Union. This informative session will provide you with valuable insights and empower you to make a difference in your communities.


📌 Webinar Title: ‘‘Empowering Patient Leaders: Understanding EU Health Policies’’
📌 Date & Time: 18 December 2023, Monday, at 14:00 EET
📌 Registration: https://forms.office.com/e/nTz4yTd9NA

Event Agenda

In this webinar, we aim to help you gain a thorough understanding of EU Health Policies, enhancing your capacity to actively participate as a TIF representative or assist another patient in public consultations and discussions held by key EU institutions such as the European Commission, the European Medicines Agency (EMA), the European Centre for Disease Prevention and Control (ECDC), the European Directorate for the Quality of Medicines & HealthCare (EDQM), and other EU-based professional organizations like the European Hematology Association (EHA).

We will explore significant policy developments within the EU, including the SoHO Regulation for blood, tissues, and cells, the Health Technology Assessment (HTA) Regulation, new EU pharmaceutical legislation, and the Cross-Border Healthcare Directive.

The Thalassaemia International Federation (TIF) is dedicated to covering training, travel, and accommodation expenses for those interested in representing our organization in EU-level public discussions and consultations. However, it is crucial that TIF representatives remain up-to-date on the latest developments within EU health policies.

To further equip you with knowledge on EU legislations and directives affecting individuals living with haemoglobinopathies, we have developed an essential online course as additional support.

Don’t miss this opportunity to broaden your knowledge and contribute effectively to these vital discussions!

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