THALIA2024
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News
JUST RELEASED | 5th Edition of TIF’s Guidelines for the Management of Transfusion Dependent β-Thalassaemia
This edition stands as a seminal resource that provides critical guidance and recommendations to healthcare professionals across various specialties, researchers and all stakeholders involved in the care of individuals affected…
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TIF AI KNOWLEDGE BOT | Your Go-To Source for Thalassaemia Information
In the world of healthcare, staying informed is key. That is why the TIF AI Knowledge Bot is here to revolutionize how you access thalassaemia information. Designed with patients, caregivers,…
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TIF READINESS ASSESSMENT TOOL | Is Your Country Ready for Advanced Thalassaemia Therapies?
In an era where medical advancements are progressing at an unprecedented rate, ensuring that these breakthroughs are accessible and appropriately integrated into national healthcare systems is a paramount challenge. This…
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NEW FACTSHEET | The Advanced Therapy Medicinal Products (ATMPs) Labyrinth
Featuring comprehensive information on: The Regulation of ATMPs in the EU List of gene-based products approved by the EMA/FDA Challenges in Patient Access to ATMPs Key Recommendations for Improving Patient…
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POSITION PAPER | The Views of TIF on Advanced Therapy Medicinal Products (ATMPs)
The Thalassaemia International Federation (TIF) is pleased to share its newly published Position Paper, titled “Advanced Therapy Medicinal Products (ATMPs).” This comprehensive document delves into the challenges eligible patients face…
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TIF News
INFOGRAPHICS | Mapping Blood Use in Patients with Thalassaemia Across the EU
Have You Ever Wondered How Much Blood is Consumed by Patients with Thalassaemia in EU Countries? To answer this question, the Thalassaemia International Federation (TIF) collected data from 15 EU…
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UNITING EXPERTS | Highlights from the 1st Nordic Red Blood Cell Meeting
The meeting, organised by the Danish Red Blood Cell Centre of the Copenhagen University Hospital – Rigshospitalet, and led by the Centre’s Research Director, Dr. Andreas Glenthøj, brought together experts…
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SPOTLIGHT | TIF Wins Prestigious HemaSphere Award at EHA2024
The HemaSphere Awards were presented by the official journal of the European Hematology Association (EHA) during Europe’s most important scientific event in the field of Haematology, EHA2024 Hybrid Congress, held…
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NEW PUBLICATION | Nutrition in Thalassaemia: A Guide for Patients, Families, and Caregivers
The guide encompasses: An overview of the nutritional needs specific to people with thalassaemia Methods for nutritional assessment Detailed explanations of nutrients particularly important for thalassaemia patients Insights into how…
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