THALIA2024
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News
POSITION PAPER | The Views of TIF on Advanced Therapy Medicinal Products (ATMPs)
The Thalassaemia International Federation (TIF) is pleased to share its newly published Position Paper, titled “Advanced Therapy Medicinal Products (ATMPs).” This comprehensive document delves into the challenges eligible patients face…
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News
INFOGRAPHICS | Mapping Blood Use in Patients with Thalassaemia Across the EU
Have You Ever Wondered How Much Blood is Consumed by Patients with Thalassaemia in EU Countries? To answer this question, the Thalassaemia International Federation (TIF) collected data from 15 EU…
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UNITING EXPERTS | Highlights from the 1st Nordic Red Blood Cell Meeting
The meeting, organised by the Danish Red Blood Cell Centre of the Copenhagen University Hospital – Rigshospitalet, and led by the Centre’s Research Director, Dr. Andreas Glenthøj, brought together experts…
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SPOTLIGHT | TIF Wins Prestigious HemaSphere Award at EHA2024
The HemaSphere Awards were presented by the official journal of the European Hematology Association (EHA) during Europe’s most important scientific event in the field of Haematology, EHA2024 Hybrid Congress, held…
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TIF News
NEW PUBLICATION | Nutrition in Thalassaemia: A Guide for Patients, Families, and Caregivers
The guide encompasses: An overview of the nutritional needs specific to people with thalassaemia Methods for nutritional assessment Detailed explanations of nutrients particularly important for thalassaemia patients Insights into how…
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TIF STUDY | Patient and Caregiver Perceptions of Thalassaemia Care in 2023
The study revealed that most patients with thalassaemia are receiving adequate treatment, including regular blood transfusions, chelation therapy, proper monitoring, and suitable imaging. Out of 2082 participants, 79.5% began transfusion…
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WHA77 SIDE EVENT | Access to Novel Therapies Globally: Opportunities and Challenges
The Side Event entitled “Access to Novel Therapies Globally: Opportunities and Challenges” is set to take place Friday, 31 May 2024, from 10:00 to 13:30, at the International Museum of…
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TIF News
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News
BREAKING NEWS | TIF Applauds the EU Parliament’s Adoption of the SoHO Regulation
The new rules modernize the existing directives, now two decades old, and are aimed at addressing challenges and weaknesses identified through the years, including, inter alia, the risk of shortages,…
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