Nurses
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Scientific Literature
Experiences of Families With Children Diagnosed With Beta-Thalassemia: A Meta-Synthesis of Qualitative Studies
Background and purpose This meta-synthesis aimed to integrate qualitative studies examining the emotional, social, and practical experiences of families caring for children diagnosed with thalassemia. Methods Following Thomas and Harden’s…
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Scientific Literature
Family Empowerment Education Module for Parents of Children With Thalassemia Major: A Randomized Controlled Study on Anxiety, Problem-Solving, and Psychological Resilience
Abstract Objective: This study determined the effect of the Family Empowerment in Pediatric Thalassemia Care (FE-PTC) Module on anxiety, problem-solving skills and psychological resilience in parents of children with thalassemia major.…
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Scientific Literature
Transition from Pediatric to Adult Care in Patients with Transfusion-Dependent Beta-Thalassemia in France: A National Study Concerning a Rare Disease
Abstract Background/Objectives: Transfusion-dependent β-thalassaemia (TDT) is a lifelong condition requiring coordinated multidisciplinary care. In France, where the disease is rare, transition from pediatric to adult care remains poorly structured, potentially…
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TIF Fellowship for Haemoglobinopathy Nurses
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Education
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TIF News
1st TIF NURSING WORKSHOP ON HAEMOGLOBINOPATHIES | 29-30 November 2025
📌 Workshop Title: 1st TIF Nursing Workshop on Haemoglobinopathies 📌 Date & Venue: Saturday & Sunday, 29-30 November 2025 | Titania Hotel, Athens, Greece Overview: This landmark workshop represents…
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Scientific Literature
A Guide for the Haemoglobinopathy Nurse
2nd edition. Nicosia (Cyprus): Thalassaemia International Federation; 2025. A comprehensive, practice-oriented reference for nurses involved in the multidisciplinary care of people with thalassaemia and other haemoglobinopathies, developed with contributions from…
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News
EMPOWERING NURSING PRACTICE IN HAEMOGLOBINOPATHIES | Discover the New TIF Guide
Nurses are the heart of haemoglobinopathy care. Their role spans far beyond routine tasks—encompassing complex clinical duties, patient advocacy, case management, emotional and psychosocial support, and education of both patients…
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Scientific Literature
Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review
Thalassemia is an inherited blood disorder affecting hemoglobin synthesis which leads to chronic hemolysis that can reduce the quality of life of children with it due to the disease and…
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TIF Publications
A Guide for the Haemoglobinopathy Nurse (2013)
Aimiuwu E., Thomas A., Roheemun N., Khairallah T. et al.
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