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Scientific Literature

A Guide for the Haemoglobinopathy Nurse

Eleftheriou, A., Angastiniotis, M., & Pelides, K. Thalassaemia International Federation. (2025)

2nd edition. Nicosia (Cyprus): Thalassaemia International Federation; 2025.

A comprehensive, practice-oriented reference for nurses involved in the multidisciplinary care of people with thalassaemia and other haemoglobinopathies, developed with contributions from an international group of specialist haemoglobinopathy nurses and clinical experts.

Across 14 chapters, the updated second edition covers the genetic basis, diagnosis and epidemiology of these conditions; blood transfusion; iron overload and chelation; major disease-related complications; fertility and pregnancy; psychosocial support; nutrition and lifestyle; prevention and neonatal screening; and emerging and curative therapies.

It also highlights the essential contribution of nurses to patient education, treatment monitoring, early recognition of complications, and the delivery of coordinated, holistic and patient-centred care throughout the life course.

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