Publications
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COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)
A document seeking to offer a risk level classification for thalassaemia and SCD patients in relation to the ongoing COVID-19 pandemic.
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Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)
A list of studies/clinical trials for developing treatments and vaccines for the COVID-19 pandemic. This list is by no means exhaustive, since research in this field is ongoing.
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Blood & COVID-19 (2020)
A guide on blood adequacy and safety during the COVID-19 pandemic, based on official recommendations from internationally recognised bodies.
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A TIF-proposed Haemoglobinopathy Patient Pathway During the COVID-19 Pandemic (2020)
A Patient Care Pathway recommending adjustments to be implemented in the admission of patients to haemoglobinopathy centers, units, or clinics during the COVID-19 pandemic.
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The COVID-19 Pandemic & Haemoglobin Disorders (2020)
An informational leaflet about the COVID-19 pandemic with a special focus on the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
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Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects related to the disease.
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Gene Therapy in β-Thalassaemia and Other Haemoglobin Disorders (2019)
An educational leaflet aimed at improving the awareness and comprehension of people with thalassaemia and other haemoglobinopathies worldwide about gene therapy.
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Thalassaemia Brochures
These six TIF-created booklets contain simple, useful information about thalassaemia that everyone should be aware of.
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Basic Recommendations in Brief for Treating Physicians (2022)
Extracted from TIF’s “Guidelines for the Management of Transfusion-Dependent Thalassaemia (4th Edition, 2021)” Prepared by: Thalassaemia International Federation Based on: Guidelines for the Management of Transfusion-Dependent Thalassaemia (4th Edition, 2021)
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Bone Marrow Transplantation in β-Thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), also known as bone marrow transplantation (BMT).
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