Projects
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TIF Collaborating Centres for Haemoglobinopathies
Many countries have centres labelled as “Thalassaemia Centres,” which can be nationally, EU, or self-assigned. These centres differ greatly in terms of expertise, services offered, patient numbers, and the level…
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TIF CARE | A New Era in Healthcare Collaboration
Mark your Calendars for the TIF CARE Launch Currently, TIF Care is in its pilot phase and the official launch is scheduled for April 2025. We will continue to…
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Epidemiology Data Bank on Haemoglobin Disorders
The epidemiology project of TIF focuses on the collection of information on carrier rates, anticipated births and current status of haemoglobinopathy control strategies within health systems in the different country…
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Haemoglobinopathy Reference Centres
This is one of TIF’s new projects undertaken for the year 2013 and its goal is to develop a database for Haemoglobinopathy reference centres across the world, mapping the services…
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European Network for Rare Anaemias
TIF has played a leading role as a partner in the European Commission-funded project ENERCA (European Network for Rare and Congenital Anaemias). The project aims to bring experts together to…
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European Patients’ Academy on Therapeutic Innovation
TIF has engaged in a project with EFGCP’s, the EU-funded European Patients’ Academy on Therapeutic Innovation’ (EUPATI). This is a patient-led academy, which will develop educational material, training courses and…
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