Projects

RAIN

RAIN

TIF’s Patient Advocacy Group (T-PAG)

TIF’s Patient Advocacy Group (T-PAG)

Ensuring Meaningful & Productive Discussions with Patient Advocates:  The T-PAG is one of the two constituent parts of ‘TIF’s Patient Advocates Programme’, itself an extension of the TIF Expert Patients…
Telemedicine

Telemedicine

Telemedicine

Telemedicine

Epidemiology Data Bank on Haemoglobin Disorders

Epidemiology Data Bank on Haemoglobin Disorders

The epidemiology project of TIF focuses on the collection of information on carrier rates, anticipated births and current status of haemoglobinopathy control strategies within health systems in the different country…
Haemoglobinopathy Reference Centres

Haemoglobinopathy Reference Centres

This is one of TIF’s new projects undertaken for the year 2013 and its goal is to develop a database for Haemoglobinopathy reference centres across the world, mapping the services…
European Network for Rare Anaemias

European Network for Rare Anaemias

TIF has played a leading role as a partner in the European Commission-funded project ENERCA (European Network for Rare and Congenital Anaemias). The project aims to bring experts together to…
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