Rare Anaemias International Network (RAIN)
TIF is the first founding member of the “Rare Anaemias International Network” (RAIN), a global community-based ecosystem of both patient organisations and individuals with rare anaemias.
Acknowledging the similarities of thalassaemia with other rare anaemias, as well as the healthcare infrastructure and other services that patients share, whilst recognizing that patients with other rare anaemias are often members of national thalassaemia associations in many countries, TIF has welcomed this opportunity to share its knowledge and expertise in the areas of education and advocacy with other organisations representing patients with rare anaemias, and simultaneously participating in an initiative that will make the global voice for rare anaemia patients, including thalassaemia, more targeted and stronger.
