News
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Deferasirox Mylan: A new generic drug for the treatment of iron overload in β-thalassaemia major obtained approval by the EMA
The European Medicines Agency’s (EMA) has recently granted marketing authorisation for the medicinal product ”Deferasirox Mylan”, intended for the treatment of chronic iron overload due to blood transfusions in patients with…
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US government & Gates Foundation pledge $200 million to bring gene therapies to patients with Sickle Cell Disease & HIV
The National Institutes of Health (NIH) and the Bill & Melinda Gates Foundation will each invest $100 million over the next four years to speed the development of affordable gene therapies for sickle cell disease (SCD)…
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New CRISPR editing tool could potentially fix 89% of genetic variations in human diseases
Scientists have raised fresh hopes for treating people with genetic disorders by inventing a powerful new molecular tool that, in principle, can correct the vast majority of mutations that cause…
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As survival increases in β-thalassemia, renal complications emerge
In a scientific paper recently published in Hematology, researchers discussed the most common pathophysiologic and clinical manifestations of renal disease in patients with beta thalassaemia. “In recent years, the…
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The future of genome editing in Europe – Bringing together the views of government, industry, patient communities, and civil society’ representatives
Genome editing is a breakthrough healthcare technology which has the potential to notably change treatment options, largely influence current healthcare models, and impact patients in clinical trials worldwide. The…
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TIF joined the Celgene’s Blood Transfusion Round Table Discussion in Brussels
On September 26, a Blood Transfusion Multi-Stakeholder Round Table Discussion was organised in Brussels by Celgene Corporation, featuring numerous scientists, haematologists, and patient organisations’ representatives. Dr. Androulla Eleftheriou, TIF Executive…
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TIF welcomes landmark UN declaration on Universal Health Coverage
A firm message in favour of achieving World Health Organization’s (WHO) number 1 goal, thus the provision of Universal Health Coverage (UHC) to citizens of all countries at a global…
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The Greek Thalassaemia Federation Hosts Its Annual Educational Conference on September 20-22
The Greek Thalassaemia Federation (EOTHA), faithful to its annual appointment with patients and specialists in the field of thalassaemia, will host the 2019 Educational Conference on September 20-22, 2019 in…
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Hypertension Medication Valsartan May Help Prevent Vaso-Occlusive Episodes in Sickle Cell Disease
A medication used to treat high blood pressure, called Valsartan, may help decrease the stickiness of red blood cells and reduce the risk of vaso-occlusive crisis in people with sickle cell…
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Cypriot Stella Kyriakides named EU Health Commissioner
Cypriot psychologist and politician to take over from Vytenis Andriukaitis on November 1 Stella Kyriakides has got the nod as EU Commissioner for Health, making her part of a strong…
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