News
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As survival increases in β-thalassemia, renal complications emerge
In a scientific paper recently published in Hematology, researchers discussed the most common pathophysiologic and clinical manifestations of renal disease in patients with beta thalassaemia. “In recent years, the…
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The future of genome editing in Europe – Bringing together the views of government, industry, patient communities, and civil society’ representatives
Genome editing is a breakthrough healthcare technology which has the potential to notably change treatment options, largely influence current healthcare models, and impact patients in clinical trials worldwide. The…
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TIF joined the Celgene’s Blood Transfusion Round Table Discussion in Brussels
On September 26, a Blood Transfusion Multi-Stakeholder Round Table Discussion was organised in Brussels by Celgene Corporation, featuring numerous scientists, haematologists, and patient organisations’ representatives. Dr. Androulla Eleftheriou, TIF Executive…
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TIF welcomes landmark UN declaration on Universal Health Coverage
A firm message in favour of achieving World Health Organization’s (WHO) number 1 goal, thus the provision of Universal Health Coverage (UHC) to citizens of all countries at a global…
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The Greek Thalassaemia Federation Hosts Its Annual Educational Conference on September 20-22
The Greek Thalassaemia Federation (EOTHA), faithful to its annual appointment with patients and specialists in the field of thalassaemia, will host the 2019 Educational Conference on September 20-22, 2019 in…
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Hypertension Medication Valsartan May Help Prevent Vaso-Occlusive Episodes in Sickle Cell Disease
A medication used to treat high blood pressure, called Valsartan, may help decrease the stickiness of red blood cells and reduce the risk of vaso-occlusive crisis in people with sickle cell…
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Cypriot Stella Kyriakides named EU Health Commissioner
Cypriot psychologist and politician to take over from Vytenis Andriukaitis on November 1 Stella Kyriakides has got the nod as EU Commissioner for Health, making her part of a strong…
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FDA Grants Priority Review to Potential Sickle Cell Disease Treatment Voxelotor
The Food and Drug Administration (FDA) will review an approval application for a drug designed to target the root cause of damage from sickle cell disease (SCD). South San…
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TIF releases new video on thalassaemia prevention
Thalassaemia is a hereditary blood disease that CAN be prevented! But in what ways? ΤΙF’s latest educational video shines a spotlight on the essential aspect of the disease’s prevention,…
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TIF issues new leaflet on gene therapy for patients with β-thalassaemia and other haemoglobin disorders
Recent scientific developments in gene therapy for β-thalassaemia have brought hope that multi-transfused β-thalassaemia patients will, in the very near future, have a chance and a choice for a…
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