Catherine Skari
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Jun- 2019 -12 JunePatients’ stories
مييا حمااكة واقعي مع الثالس by Hanady Alsanwi
Winner Story #2– International Thalassaemia Day 2018 متكرر ما بني الفرتة واألخرى ونظرات ً ال يفارق جسدي ونقل دما…
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12 JunePatients’ stories
LET’S MOVE TO A BETTER FUTURE by Siti Nur Azilayati Rahmah Raman
Winner Story #3 – International Thalassaemia Day 2018 ”My family living in the rural area because my father being assign…
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Dec- 2021 -10 DecemberNews
TIF Guide on COVID-19 Vaccinations & Therapeutic Drugs – The December Issue
During this last fortnight, experts have scrambled to gain an understanding of the new heavily mutated variant, what kind of…
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Jun- 2019 -6 JuneNews
A milestone in the treatment of b-thalassaemia – The 1st gene therapy for Transfusion Dependent β-Thalassaemia wins approval in Europe
Zynteglo, Bluebird Bio’s ex vivo gene therapy for β-thalassaemia, got a green light from the EMA for conditional marketing…
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May- 2019 -29 May
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21 MayEvents
World Blood Donor Day – 14 June 2019
This year, World Blood Donor Day will once again be celebrated around the world on 14 June! The event serves…
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20 MayEvents
TIF to organize a Capacity Building Workshop for Patients’ Organizations and individuals with thalassaemia in October 2019!
This fall TIF is coming to Germany✈️✈️ and is more than excited to announce its forthcoming Capacity Building Workshop…
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17 MayNews
TIF’s e-registry for patients with thalassaemia is ready for piloting
TIF with support from Celgene Corporation, has developed a disease specific e-registry with health record for patients with thalassaemia.…
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15 MayTIF Publications
Bone Marrow Transplantation in β-Thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), also known as bone marrow…
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Dec- 2021 -6 DecemberNews
FDA Grants Priority Review to Luspatercept-aamt for Anemia in Adults With NTD β-Thalassaemia
The FDA has set a Prescription Drug User Fee Act (PDUFA) goal date of March 27, 2022. In addition, the…
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