Catherine Skari

Delegation Visit to Germany – 29-30 April 2017

  The medical, social and economic challenges of haemoglobinopathies (thalassaemia and sickle cell disease) are increasingly being acknowledged in Europe,…

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RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases

Rare Disease Day is the movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis…

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Delegation Visit to China – 13-15 December 2015

A delegation visit was conducted by TIF in China between the 13th and the 15th of December 2015. The objectives…

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PYRUVATE KINASE DEFICIENCY | FDA Approves First Drug For The Rare Inherited Anemia

The US Food and Drug Administration (FDA) has announced the approval of Mitapivat (PYRUKYND®) tablets as treatment for haemolytic anemia…

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Delegation Visit to Pakistan – 27-29 November 2015

TIF was invited to participate in the faculty of speakers at 10th National Thalassaemia Conference, organised by the Thalassaemia Federation…

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Delegation Visit to Azerbaijan – 16-18 November 2015

TIF organised a delegation visit to Baku,  between the 16th and 18th of November 2015, with a view to revisiting…

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Delegation Visit to Germany – 24-27 September 2015

TIF has completed a delegation visit to Germany between 24-27 September 2015, represented by Mr George Constantinou, TIF Board Member.…

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Delegation Visit to Iran – 16-18 September 2015

  TIF conducted a delegation visit to Iran, between 16-18 September 2015, after receiving an invitation by medical specialists of…

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TIF INTERNATIONAL CONFERENCE | 19-21 November 2021

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Bluebird puts €1.58m price on gene therapy Zynteglo

  Bluebird bio Inc. set a price for its gene therapy, Zynteglo, at 1.58 million euros ($1.78 million) over five…

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