Catherine Skari
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Apr- 2022 -19 AprilNews
NEW WEBINAR | Exploring The Value Of Patient Advocacy For Better Thalassaemia Care
The objective of this meeting, which brings together eminent haemoglobinopathies specialists and expert patient advocates from Italy and other countries,…
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Dec- 2018 -14 December
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Apr- 2022 -19 AprilNews
ROSARIO’S STORY | A True Champion of Resilience
Rosario was more than eager to recount this wonderful experience to TIF for the International Thalassaemia Day 2022 and share…
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Mar- 2022 -26 MarchNews
INTERNATIONAL THALASSAEMIA DAY 2022: Be Aware. Share. Care
Visit the International Thalassaemia Day (ITD) 2022 page, now LIVE on the TIF website, to discover the idea behind the…
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15 MarchPatients’ stories
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I…
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Sep- 2025 -10 September
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10 September
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Apr- 2021 -26 AprilNews
TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia
The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™)…
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Dec- 2017 -19 December
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Feb- 2023 -28 February
