Catherine Skari
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Mar- 2022 -15 MarchPatients’ stories
IRON BOY: SURVIVING β-THALASSAEMIA MAJOR by Arthur Bozikas
Where was my wife? I found myself sitting alone in front of the obstetrician, who my wife, Helen, and I…
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Sep- 2025 -10 September
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10 September
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Apr- 2021 -26 AprilNews
TIF’s Statement on Accessibility of Gene Therapy for Thalassaemia
The Thalassaemia International Federation (TIF) expresses its disappointment about the outcome of the reimbursement negotiation process concerning gene therapy (Zynteglo™)…
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Dec- 2017 -19 December
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Feb- 2023 -28 February
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May- 2017 -1 MayDelegation Visits 2017
Delegation Visit to Germany – 29-30 April 2017
The medical, social and economic challenges of haemoglobinopathies (thalassaemia and sickle cell disease) are increasingly being acknowledged in Europe,…
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Feb- 2022 -21 FebruaryNews
RARE DISEASE DAY 2022 | Raising Awareness For People With Rare Diseases
Rare Disease Day is the movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis…
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Dec- 2015 -16 DecemberDelegation Visits 2015
Delegation Visit to China – 13-15 December 2015
A delegation visit was conducted by TIF in China between the 13th and the 15th of December 2015. The objectives…
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Feb- 2022 -18 FebruaryClinical News
PYRUVATE KINASE DEFICIENCY | FDA Approves First Drug For The Rare Inherited Anemia
The US Food and Drug Administration (FDA) has announced the approval of Mitapivat (PYRUKYND®) tablets as treatment for haemolytic anemia…
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