Education
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TIF News
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News
PK Deficiency Resources Now Available On TIF’s Website
Recognizing the similarities of thalassaemia with other rare anaemias, particularly those affecting red blood cells, (e.g. PKD, SCD), and noting the absence of disease-specific united internationally coordinated patient organizations to…
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TIF News
Coming Up This Week: ”Iron Monitoring in Thalassaemia” Webinar for Patients
Although chronic blood transfusion regimens have added decades to the lives of patients with thalassaemia, clinicians are now faced with increasingly complicated management challenges. The devastating effect of the accumulated…
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TIF News
The 1st TIF Webinar for Medical Specialists Scheduled for 11 May
The 1st webinar for Medical Specialists organised in the context of TIF’s eThalEd online course has just arrived! Dr Antonio Piga, Professor of Paediatrics & Dean of the Medicine School at…
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TIF News
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TIF Publications
Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
The “Thalassaemia from A to Z” electronic glossary is a comprehensive, easy-to-use, educational tool for thalassaemia, including definitions of all important concepts on the prevention, management, treatment, organ complications, and…
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TIF Publications
Gene Therapy in β-thalassaemia and other haemoglobin disorders (2019)
An educational leaflet aiming to strengthen the knowledge and understanding of patients with thalassaemia and other haemoglobin disorders across the world on most aspects relevant to gene therapy. English Bulgarian…
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Publications
Bone Marrow Transplantation in β-thalassaemia (2018)
An educational leaflet with important information for β-thalassaemia patients on hematopoietic stem cell transplantation (HSCT), more commonly known as bone marrow transplantation (BMT). English Bulgarian Farsi
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TIF News
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News