Position Papers
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Position Statement: COVID-19 & Thalassaemia
Many patients with haemoglobinopathies, including thalassaemia and sickle cell disease, are at increased risk of developing severe complications from the coronavirus disease 2019 (COVID‐19). In this Position Statement, TIF reflects…
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Position Statement: The Use of DEHP Plasticizers in Medical Devices
The safety concerns linked to the use of DEHP plasticizers, a manufactured chemical common in blood bags and PVC intravenous fluid sets, has been explored, and even questioned, by many…
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Position Statement: COVID-19 & Inclusion of Thalassaemia and SCD Patients in the High-Risk Population
Through this Position Statement, TIF encourages National Health Authorities of every country across every region of the world, in the context of their national fight against the COVID-19 pandemic, to…
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TIF’s Positions in a Nutshell
This document summarizes TIF’s position on key areas of concern. TIF’s positions in a nutshell.
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Position Paper: Safeguarding Blood Safety
In addition to the emphasis that TIF has placed on the topic of blood in its educational programme, the Federation has prepared, published and distributed a position paper titled ‘Safeguarding blood safety’. The present…
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Position Paper 5.6: Viral Hepatitis C in Thalassaemia
The Thalassaemia International Federation (TIF) representing and safeguarding the rights of patients with Haemoglobin (Hb) disorders across the world for quality health care and services, has taken the decision, in…
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Position Paper 5.4: Patients’ Rights
Continuous provision of updated, quality information to patients and their families particularly in the case of genetic (chronic) diseases such as thalassaemia constitutes a major objective for the existence of…
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Position Paper 5.3: Counterfeit Medicines & Patients’ Safety
The Thalassaemia International Federation (TIF) has focused attention for some time now and continues to do so, on the need for more strengthened and coordinated actions towards ensuring patients’ safety…
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Position Paper 5.2: Addressing the Management of NTDTs
As a non-governmental, non-profit, patients’ organisation, the Thalassaemia International Federation (TIF) has fought for nearly three decades (since its establishment in 1986) towards the promotion of the rights of patients…
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