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Patients’ Rights

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  • Create Date August 4, 2017
  • Last Updated October 6, 2026

Patients' Rights

Providing patients and their families with reliable, up-to-date information is a core responsibility of patient organisations, particularly those supporting people with lifelong genetic conditions such as thalassaemia.

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1 file
5-4_patientsrights_positionpaper.pdf
60.66 KB
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