TIF Publications
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Nutrition in Thalassaemia: A Guide for Patients, Families and Caregivers (2024)
This indispensable resource has been meticulously crafted by TIF to inform and empower individuals living with thalassaemia, along with their families and caregivers, by offering extensive nutritional guidance tailored to…
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Nutrition in Thalassemia & PKD: A Guideline for Clinicians (2023)
A comprehensive publication on nutrition in two inherited haemolytic anaemias; thalassaemia and PKD, aimed at offering a critical review of existing knowledge, benefiting both haematologists and dietitians in managing patients…
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Guidelines for the Management of α-Thalassaemia (2023)
The first-ever Guidelines for the Management of α-thalassaemia serve as an indispensable resource for healthcare professionals, researchers, and others involved in the care of individuals with this complex, genetic blood…
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Travel Guidance for Patients and Families – Living with Thalassaemia, SCD and other Rare Anaemias (2023)
A useful Travel Guide providing considerations, tips and guidance for people with thalassaemia, sickle cell disease (SCD), and rare anaemias who intend to travel abroad.
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EU Policies Made Simple – FactSheet Series (2023)
A series of factsheets that offer an easy-to-understand overview of what Europe has achieved so far in key health policy areas, such as Access to Drugs, Cross Boarder Healthcare, and…
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Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia (3rd edition – 2023)
Ali T. Taher, MD PhD FRCP Khaled M. Musallam, MD PhD Maria Domenica Cappellini, MD FACP
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A Short Guide for the Management of Transfusion-Dependent Thalassaemia (2nd edition – 2022)
Prepared by: Farmakis, D. Reviewed by: Eleſtheriou, A., Bain, B.
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Potentially Curative Approaches for β-Thalassaemia (2021)
A comprehensive infographic with a head-to-head comparison on the most essential aspects of BMT, Gene Therapy & Gene Editing as potentially curative procedures for patients with β-thalassaemia.
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Explaining Gene Therapy in Thalassaemia (2020)
The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
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Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)
An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
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