Publications

IMR-687

IMR-687

Imara (IMR-687)   Update: 25 August 2020 Imara recently initiated a Phase 2b clinical trial of IMR-687 in adult patients with beta-thalassaemia and expects to dose the first patient in…
Explaining Gene Therapy in thalassaemia (2020)

Explaining Gene Therapy in thalassaemia (2020)

The second educational brochure from the TIF’s ‘Gene Therapy’ booklet series, providing an in-depth view of how this revolutionary therapy works in patients with β-thalassaemia major.
Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

Prevention of Inherited Diseases – The Example of β-Thalassaemia (2020)

An educational brochure explaining the inheritance patterns of β-thalassaemia and the choices available for an ”at-risk” couple to have a child without the disease.
COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

COVID-19 & Haemoglobin Disorders: Compilation of Information for Sickle Cell Disease (2020)

This document, prepared by the Thalassaemia International Federation , is a compilation of information exclusively for Sickle Cell Disease patients with regard to the coronavirus pandemic.
COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

COVID-19 & Haemoglobin Disorders: A Classification of Risk Groups & Other Considerations (2020)

A TIF-compiled document aiming to provide a division of risk levels for thalassaemia and SCD patients with regards to the ongoing COVID-19 pandemic.
WEEKLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

WEEKLY UPDATE: Developing Vaccinations & Therapeutic Drugs for COVID-19

All the latest updates of TIF’s Vaccinations & Therapeutic Drugs Guide for COVID-19 gathered in one single document.
Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

Developing Vaccinations & Therapeutic Drugs for COVID-19 (2020)

TIF has compiled a list of studies/clinical trials for developing drugs and vaccines for the COVID-19 Pandemic, which is by no means exhaustive as research in this area is dramatically…
Blood & COVID-19 (2020)

Blood & COVID-19 (2020)

An informational guide about blood adequacy and safety during the COVID-19 Pandemic, compiled on the basis of official recommendations from internationally recognized bodies.
A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A TIF-proposed Haemoglobinopathy Patient Pathway during the COVID-19 Pandemic (2020)

A  Haemoglobinopathy Patient Care Pathway suggesting changes to be made during the outbreak of COVID-19 in the admittance of patients to haemoglobinopathy day care centres /units /clinics.
The COVID-19 Pandemic & Haemoglobin Disorders (2020)

The COVID-19 Pandemic & Haemoglobin Disorders (2020)

An informational leaflet about the new COVID-19 with a special focus to the challenges it presents for patients affected by thalassaemia and sickle cell disease (SCD).
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