tifwp
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Feb- 2020 -7 February
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5 February
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Jan- 2020 -21 JanuaryPatients’ stories
A NORMAL LIFE by Miriam Lauria
“My name is Miriam and I live in the province of Matera, Italy. I have been suffering from thalassaemia…
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15 JanuaryPatients’ stories
LOVING LIFE ENOUGH by Mary Manachi
This is the story of the late Mrs. Mary Manachi from New Jersey, USA, who lost 3 children from thalassaemia…
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Dec- 2019 -21 DecemberConferences
THALASSAEMIA & SCD HCPs HIGH-LEVEL SUMMIT | 1-2 November 2019
Intensifying its long-standing efforts to provide constructive training to both thalassaemia and other haemoglobinopathy patients and to the specialized…
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21 DecemberConferences
CAPACITY, COMPETENCE & CONFIDENCE WORKSHOP FOR PATIENT ORGANISATIONS | 12-13 October 2019
Aiming at the continuous training of patients on issues relevant to the management of thalassaemia and other haemoglobinopathies, as well…
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6 DecemberTIF Publications
Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia (2019)
An easy-to-use, educational tool for thalassaemia, featuring definitions of important terms on the prevention, management, treatment, complications, and other aspects…
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Nov- 2019 -14 November
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Jul- 2019 -22 JulyPatients’ stories
FIGHTING WITH HOPE by Bidhan Sarkar
Winner Story #3 – International Thalassaemia Day 2019 ”I was born in a small village in Bangladesh. Four years…
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21 JulyPatients’ stories
LIFE WITH & WITHOUT THALASSAEMIA by Diane Abou Hamia
Winner Story #2 – International Thalassaemia Day 2019 ”I had been diagnosed with thalassaemia major at the age of…
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