Catherine Skari

PROFILE | After Major Advances In Hematology, Dr David Bodine Retires

When David M. Bodine, Ph.D., arrived at the US National Institutes of Health (NIH) for a postdoctoral fellowship in Arthur Nienhuis’s…

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CLINICAL NEWS | First Cohort of Patients Dosed In Phase 2 Study Of KP104 In PNH

KP104 is a first-in-class, bifunctional biologic designed to modulate complement activity through selective targeting of key intervention points in the…

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DIAGNOSTICS | FDA Clears Baebies Disposable Enzyme Deficiency G6PD Test

  Using a 50 µL blood sample (one drop of blood), FINDER delivers results approximately 15 minutes after sample introduction.…

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DRUGS | EMA Starts Pilot To Collect Information On Ongoing/Potential Shortages

  To help address this issue, the European Medicines Agency (EMA) is starting a pilot to collect information on ongoing…

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Emergent Treatments for β-Thalassemia and Orphan Drug Legislations

Highlights • β-THAL is one of the most prevalent blood disorders in some regions of the world. • However, given its prevalence,…

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NEW HOPE FOR THALASSAEMIA/SCD | UK Trial Of Lab Grown Red Blood Cells Begins

The Restore trial, led jointly by NHS Blood and Transplant and the University of Bristol, is studying the lifespan of the…

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NEW | Bluebirdbio Releases Resources For Patients On Gene Therapy Zynteglo®

To help people who are living with or caring for someone who has β-thalassaemia major get substantial information about Zynteglo®,…

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UNITED Onlus | The Italian Federation Of Thalassaemia Welcomes Newly Elected BoD

The assembly was held in the conference room of the Zone Hotel in Rome. The members of the new board…

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OUT NOW | 2021 TIF Annual Report Has Been Published

The 2021 Annual Report will cover the following and more: Message by TIF’s President and Executive Director  2021 in Numbers…

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THALASSAEMIA AND SICKLE CELL AUSTRALIA (TASCA) | Spring Newsletter 2022

Contents: Chair’s address Staff update TIF update TASCA Engagement In Memory of Lou Alborea TASCA kids’ page View the Newsletter…

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