Catherine Skari

The Danish National Haemoglobinopathy Screening Programme: Report From 16 Years of Screening in a Low-prevalence, Non-endemic Region

The Danish national haemoglobinopathy screening programme seeks to determine parental haemoglobinopathy carrier state antenatally. In this retrospective register based study,…

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Analysis of the Pregnancy Status and Outcomes of Pregnant Women with α-Thalassemia: A Retrospective Clinical Study

Background: The prevalence of α-thalassemia is high in Guangxi, and its co-occurrence with pregnancy may impede maternal system functions, with…

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WEBINAR | Official Launch of TIF’s Nutrition Guidelines in Thalassaemia and PKD

This essential guide has been eagerly awaited by healthcare professionals and patients alike, and we are pleased to invite you…

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BLOOD TRAΝSFUSION THERAPY | FDA Approves Hemanext ONE®

This revolutionary technology sets a new standard in RBC processing and storage by limiting oxygen in the storage environment, thereby…

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How I Τreat Non-Transfusion-Dependent β-Thalassemia

The intricate interplay of anemia and iron overload under the pathophysiological umbrella of ineffective erythropoiesis in non-transfusion-dependent β-thalassemia (NTDT) results…

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WEBINAR | Haemoglobin Disorders and EU Health Policies, 21 September 2023

Designed for patients and their families, these webinars aim to foster national advocacy for the improvement of service delivery. The…

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Corticosteroid Use in Pregnant Women with SCD Doubles Risk of Severe VOCs

According to a French study, corticosteroids used during pregnancy are a risk factor for more severe vaso-occlusive crises (VOCs) in…

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CLINICAL NEWS | FDA Approves Luspatercept for First-line Treatment of Anemia in Lower-Risk MDS

The approval was based on interim results from the pivotal phase 3 COMMANDS trial (ClinicalTrials.gov Identifier: NCT03682536) that evaluated the efficacy…

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TIF European Health Policy Webinar Series | 21 September 2023

Designed for patients and their families, these webinars aim to foster national advocacy for the improvement of service delivery. The…

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PUBLICATIONS | Nutrition Guidelines in Thalassemia & PKD

Nutrition holds a significant position in the lives of individuals afflicted with thalassaemia and other hereditary anaemias. As part of…

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