Catherine Skari

TIF’s NEW e-COURSE | Enhance Your Understanding of EU Health Policy

To address this need, the Thalassaemia International Federation (TIF) has launched an e-course titled ‘EU Health Policy Course’, which offers…

Read More »

TIF2023 | 16th International Conference on Thalassaemia & Haemoglobinopathies, November 3-5

The Conference, organized in collaboration with the Federation of Malaysia Thalassaemia Societies, the Malaysia Hematology Society and the Malaysian Association…

Read More »

CLINICAL NEWS | Promising Outcomes Found with Stem Cell Transplant for Fanconi Anemia-related Leukemia, MDS

Two-thirds of patients who received allogeneic hematopoietic stem cell transplantation (allo-HSCT) to treat myelodysplastic syndrome (MDS) or acute myeloid leukemia…

Read More »

Pneumococcal Infections in Children with Sickle Cell Disease Before and After Pneumococcal Conjugate Vaccines

Children with sickle cell disease (SCD) are at increased risk of invasive pneumococcal infections (IPD). Over 25 years the Georgia…

Read More »

POSITION PAPER | Strengthening the Resilience of EU Health Systems

Thalassaemia is more than just a rare condition in Europe; it is a pressing issue that requires prompt action. With…

Read More »

THAL PALS PODCAST | New Episode on TIF’s NTDT Guidelines Out Now

Dr. Κevin Kuo, MD, MSc, Clinician Investigator, and Μrs. Laurice Levine, Thalassaemia Patient Advocate, talk to TIF’s Executive Director, Dr…

Read More »

Imatinib’s Impact on Reducing Painful Episodes in Sickle Cell Disease

Currently, hydroxyurea (HU) is the only FDA-approved drug highly recommended for treating sickle cell anemia. However, its efficiency varies among…

Read More »

Impact of Imatinib on Reducing the Painful Crisis in Patients with Sickle Cell Disease

Introduction: Sickle cell disease (SCD) is a common hemoglobinopathy worldwide that causes painful crises and hospitalization of patients. These attacks decrease survival and cause…

Read More »

Health-Related Quality-of-Life Profile of Pediatric Patients with β-Thalassemia after Hematopoietic Stem Cell Transplantation

Matched hematopoietic stem cell transplantation (HSCT) is a feasible and curative treatment in pediatric patients with beta thalassemia major (β-TM).…

Read More »

Modelling the Public Health Impact of Voxelotor in the Management of Sickle Cell Disease in France

Sickle cell disease (SCD) is an inherited blood disorder in which sickle hemoglobin (HbS) polymerizes, leading to red blood cell…

Read More »