Catherine Skari

INTERNATIONAL THALASSAEMIA DAY 2026 | A New Theme for Global Action

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RARE DISEASE DAY 2026 | More Than You Can Imagine

This year’s theme, “More Than You Can Imagine,” reminds us that rare diseases are far more common, complex, and impactful…

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wAIHA | Sovleplenib Demonstrates Positive Phase III Clinical Results

  wAIHA is a rare autoimmune disorder in which the immune system produces antibodies that mistakenly target and destroy red…

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THALASSAEMIA IN THE AMERICAS | New TIF White Paper Calls for Coordinated Action and Equity in Care

Developed in the context of the 1st TIF Pan-American Conference on Thalassaemia and Other Haemoglobin Disorders, held in Washington, D.C.…

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THE MENA THALASSAEMIA EXPERIENCE: A Two-Day, In-Person Masterclass

IMPORTANT: In light of the current unrest in the Middle East and the evolving regional situation, this masterclass is postponed…

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U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness

The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly…

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SICKLE CELL DISEASE | Alzheimer’s Drug Demonstrates Potential Therapeutic Benefit

The study explores the potential of memantine, a medication that has been safely used for many years in the treatment…

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FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia

This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only…

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PUTTING PATIENTS FIRST IN CLINICAL RESEARCH | New EU Recommendations to Reduce Trials Bureaucracy

As Prof. Martin Dreyling, Chair of the Coalition for Reducing Bureaucracy, explains: “The current safety requirements for investigators are disproportionately…

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