Catherine Skari
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Jan- 2026 -30 JanuaryNews
THALASSAEMIA IN THE AMERICAS | New TIF White Paper Calls for Coordinated Action and Equity in Care
Developed in the context of the 1st TIF Pan-American Conference on Thalassaemia and Other Haemoglobin Disorders, held in Washington, D.C.…
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28 JanuaryNews
THE MENA THALASSAEMIA EXPERIENCE: A Two-Day, In-Person Masterclass
IMPORTANT: In light of the current unrest in the Middle East and the evolving regional situation, this masterclass is postponed…
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26 JanuaryNews
U.S. EXIT FROM WHO | Implications for Global Health Cooperation and Preparedness
The U.S. government said the decision was based on concerns about how the WHO handled previous global health emergencies, particularly…
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19 JanuaryNews
SICKLE CELL DISEASE | Alzheimer’s Drug Demonstrates Potential Therapeutic Benefit
The study explores the potential of memantine, a medication that has been safely used for many years in the treatment…
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4 January
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Dec- 2025 -27 DecemberNews
FDA APPROVES AQVESME™ (mitapivat) | First Oral Therapy for Anaemia Across All Forms of Thalassaemia
This regulatory decision marks a landmark milestone in the management of thalassaemia, as AQVESME is now the first and only…
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17 DecemberNews
PUTTING PATIENTS FIRST IN CLINICAL RESEARCH | New EU Recommendations to Reduce Trials Bureaucracy
As Prof. Martin Dreyling, Chair of the Coalition for Reducing Bureaucracy, explains: “The current safety requirements for investigators are disproportionately…
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12 DecemberNews
EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health
This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the…
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9 DecemberScientific Literature
National Thalassemia Registry: A 30-year Journey of implementing Carrier Screening in Singapore
Introduction Haemoglobinopathies, which include thalassemia and structural haemoglobin variants, are the most common inherited disease affecting an estimated 20% of the world’s population.…
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9 December
