Catherine Skari

EU AGREES LANDMARK REFORM OF PHARMACEUTICAL LEGISLATION | What It Means for Patients and Public Health

 This milestone agreement — part of what has been referred to as the “pharma package” — was negotiated between the…

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National Thalassemia Registry: A 30-year Journey of implementing Carrier Screening in Singapore

Introduction Haemoglobinopathies, which include thalassemia and structural haemoglobin variants, are the most common inherited disease affecting an estimated 20% of the world’s population.…

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1st TIF NURSING WORKSHOP ON HAEMOGLOBINOPATHIES | 29-30 November 2025

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1st TIF NURSING WORKSHOP ON HAEMOGLOBINOPATHIES | 29-30 November 2025

📌 Workshop Title: 1st TIF Nursing Workshop on Haemoglobinopathies 📌 Date & Venue: Saturday & Sunday, 29-30 November 2025 |…

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TOPICS IN FOCUS SERIES | Guidelines for the Management of Thalassaemia Syndromes

Each booklet focuses on a specific aspect of the updated guidelines for transfusion-dependent thalassaemia (TDT), non-transfusion-dependent β-thalassaemia (NTDT), and α-thalassaemia,…

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ANNUAL REPORT 2024 | A Year of Resilience and Progress

It is a privilege to present the Federation’s Annual Report for 2024, capturing a year defined by resilience, innovation, and…

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SICKLE CELL DISEASE | Inflammation during Menstrual Cycle May Trigger Pain Crises

SCD is a genetic disorder in which red blood cells can become abnormally shaped (“sickle”), leading to blockages in blood…

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SEVERE APLASTIC ANAEMIA | Stem Cell Transplant Opens New Possibilities

Severe aplastic anaemia is a rare but serious disorder in which the bone marrow fails to produce enough red and…

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BOOSTING DONOR HEALTH | How Iron Speeds Post-Donation Recovery

The FORTE trial investigated the effects of oral iron supplementation in blood donors with ferritin levels of 30 µg/L or…

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SICKLE CELL DISEASE | Limited Progress in Sickle Cell Disease Highlights Barriers to Treatment Access

According to the findings, there has been limited improvement in outcomes for SCD patients, in large part due to barriers…

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